Cameron’s Medical Journey

Cameron is a 9mo baby boy who was diagnosed with a ultra rare genetic condition called Hypomyelinating Leukodystrophy-14 in early April. Considering the rarity of the this condition, the doctors did not have much information to give the family except a prognosis of 2 years old. His family still has a very long unexpected road ahead of them. Cameron gets therapy 3x a week on top of all the follow up appointments between the many different doctors he sees (neurologist, cardiologist, PM&R, ENT, geneticist, etc) His parents are planning a trip to a childrens hospital also known as CHOP in Philadelphia in August to get seen by some of the worlds experts in Leukodystrophies hoping to get more answers for their son. It is still unknown if this visit will be covered by his insurance but they were told everything else will be out of pocket. With that being said, the money raised will go to helping cover medical costs, travel expenses, and living expenses during this devestating time. The most important thing to them was getting awareness out there for their beautiful baby boy. We appreciate the overwhelming support shown by the community and thank everyone for their help.