For those visiting our GoFundMe page for the first time, welcome — and thank you for being here. We recently increased our fundraising goal to $75,000 to reflect the additional funds needed to purchase an accessible van for Cameron and his family. This van is essential for safely transporting Cam, his equipment, his nurse, and his family to school, appointments, and outings.
To be clear:
The first $33,000 raised (prior to March 2026) was from our original round of fundraising.
Those generous donations were used — with deep gratitude — to cover:
- extensive travel to and from Michigan during Cam’s first year of diagnosis
- ongoing medical expenses not covered by insurance (his monthly vitamins alone are significant)
- income loss when Val took unpaid leave during a period when Cam’s end‑of‑life seemed heartbreakingly near
Now, we are beginning a second round of fundraising specifically for the accessible van. We have raised almost $2,000 so far, and our goal is to reach $20–25K to purchase a reliable used van that meets Cam’s needs.
To those who supported us in the first round — and to those who continue to stand with Cam and the family — thank you. Your love, generosity, and steady presence have carried this family through the darkest moments of this devastating disorder.
If you prefer not to donate through GoFundMe or if you'd like to donate a basket to the event, you can message us directly on GoFundMe or reach out to Ginny (Cam's Nana) on Facebook!
Please stay tuned for frequent updates as we prepare for the upcoming fundraiser and gather together to celebrate Cam’s life while he is still with us.
With deep gratitude,
The Family of Cameron Kisiel‑Haug
_____________________
CAM'S JOURNEY:
Cameron has been diagnosed with Leigh Syndrome, a devastating and life-limiting illness. Cam's diagnosis, specifically, is Mitochondrial DNA-Associated Leigh Syndrome and NARP.
Cameron and the family frequently travel to the Children's Hospital at the University of Michigan for continued care, and the team there has been amazing. We have set up this GoFundMe to help cover current and upcoming expenses, including hospital, medical, and pharmaceutical bills, travel, and all travel-associated costs for trips to Michigan with Cam, medical support at home, and ways to celebrate Cam.
These donations also help make up for lost income as his parents figure out ways to maximize time with Cam for as long as possible.
It also helps to cover the cost of his feedings and medicine. Cameron is on a feeding tube and gets all of his nutrition from that. Since there is no cure for this disease, Cam's best defense is a balance of nutrients and vitamins through his feeding tube. Val and Rick have to go to the pharmacy almost daily at this point since most pharmacies don't regularly carry what Cam needs.
Thank you to every single person who has shared this fundraiser, donated money, or reached out to help in many other ways. We appreciate it more than you know.
To learn more about Mitochondrial DNA-Associated Leigh Syndrome and NARP, visit: https://www.ncbi.nlm.nih.gov/books/NBK1173/
To leave prayers or well wishes for the family, or to learn other ways to help, please visit our Caring Bridge site at https://www.caringbridge.org/visit/cameronkh
If you have questions, thoughts, or concerns, please reach out to the "Cam Team."
Let's let Cam have the full time and attention with his family.
Cam Team Initial Contacts can be found at the Caring Bridge site.
LEARN MORE
To learn more about Mitochondrial DNA-Associated Leigh Syndrome and NARP, visit: https://www.ncbi.nlm.nih.gov/books/NBK1173/
- United Mitochondrial Disease Foundation www.umdf.org (http://www.umdf.org/)
- Mito Action www.mitoaction.org (http://www.mitoaction.org/)
- Cure Mito www.curemito.org (http://www.curemito.org/)
- www.aboutleighsyndrome.com (http://www.aboutleighsyndrome.com/)