Thank you for all of your support. The Basket Fundraiser was a huge success! The gifts and donations continue to roll in, which is great, because we are on the hunt for a van for Cam!
We are working hard to find the best fit in our budget, and as soon as we have the right one, we'll be sure to share an update with all of you.
We welcome any additional gifts as we continue to find a suitable van, as we are still not yet at our goal.
We are grateful for all of your support and remain amazed by our family, friends, and the community who continue to support Cam and his fam. Stay tuned for van updates soon!
HOW TO CONTACT US ON GOFUNDME: Scroll down to Co-organizers, click "Message" below Samantha Clink. Samantha and Ginny will receive your message.
Thank you for your support—Let’s Get a Van for Cam!
For those visiting our GoFundMe page for the first time, welcome — and thank you for being here. We recently increased our fundraising goal to $75,000 to reflect the additional funds needed to purchase an accessible van for Cameron and his family. This van is essential for safely transporting Cam, his equipment, his nurse, and his family to school, appointments, and outings.
To be clear:
The first $33,000 raised (prior to March 2026) was from our original round of fundraising.
Those generous donations were used — with deep gratitude — to cover:
- extensive travel to and from Michigan during Cam’s first year of diagnosis
- ongoing medical expenses not covered by insurance (his monthly vitamins alone are significant)
- income loss when Val took unpaid leave during a period when Cam’s end‑of‑life seemed heartbreakingly near
To those who supported us in the first round — and to those who continue to stand with Cam and the family — thank you. Your love, generosity, and steady presence have carried this family through the darkest moments of this devastating disorder.
With deep gratitude,
The Family of Cameron Kisiel‑Haug
_____________________
CAM'S JOURNEY:
Cameron has been diagnosed with Leigh Syndrome, a devastating and life-limiting illness. Cam's diagnosis, specifically, is Mitochondrial DNA-Associated Leigh Syndrome and NARP.
Cameron and the family frequently travel to the Children's Hospital at the University of Michigan for continued care, and the team there has been amazing. We have set up this GoFundMe to help cover current and upcoming expenses, including hospital, medical, and pharmaceutical bills, travel, and all travel-associated costs for trips to Michigan with Cam, medical support at home, and ways to celebrate Cam.
These donations also help make up for lost income as his parents figure out ways to maximize time with Cam for as long as possible.
It also helps to cover the cost of his feedings and medicine. Cameron is on a feeding tube and gets all of his nutrition from that. Since there is no cure for this disease, Cam's best defense is a balance of nutrients and vitamins through his feeding tube. Val and Rick have to go to the pharmacy almost daily at this point since most pharmacies don't regularly carry what Cam needs.
Thank you to every single person who has shared this fundraiser, donated money, or reached out to help in many other ways. We appreciate it more than you know.
To learn more about Mitochondrial DNA-Associated Leigh Syndrome and NARP, visit: https://www.ncbi.nlm.nih.gov/books/NBK1173/
To leave prayers or well wishes for the family, or to learn other ways to help, please visit our Caring Bridge site at https://www.caringbridge.org/visit/cameronkh
If you have questions, thoughts, or concerns, please reach out to the "Cam Team."
Let's let Cam have the full time and attention with his family.
Cam Team Initial Contacts can be found at the Caring Bridge site.
LEARN MORE
To learn more about Mitochondrial DNA-Associated Leigh Syndrome and NARP, visit: https://www.ncbi.nlm.nih.gov/books/NBK1173/
- United Mitochondrial Disease Foundation www.umdf.org (http://www.umdf.org/)
- Mito Action www.mitoaction.org (http://www.mitoaction.org/)
- Cure Mito www.curemito.org (http://www.curemito.org/)
- www.aboutleighsyndrome.com (http://www.aboutleighsyndrome.com/)

