Calie's medical fund
Donation protected
It saddens me as a mother/wife that things have gotten to this point, but as of now we have exhausted
all of our options and have been recommended
by a few freinds to try and start a go fund me page. I will try my best to condence our whole story into a readable couple of paragraphs.
About 5 years ago our daughter Calie was born at 27 weeks extremely sick and premeture. We would soon find out that she was born with cCMV which is a nasty nasty virus that attacked her whole body including her brain. About a month into her 4 month NICU stay we started recieving the bad news that her brain wasnt growing. Upon further scans and tests it was discovered that she had severe brain damage and leukomalcaia. (deminished white matter of the brain). We were givin options as to if we wanted to proceed with life sustaining measures for her or let her pass. Before we had a chance to make that decision that no parent should ever have to make, she extubated herself (pulled her breathing tube out) and was able to sustain herself by nasal canula. At that point we had no chance but to fight for and with her. At that point, this hard hard journey of the last 5years of life began.
About a month into her NICU stay, I started my new job at Kaiser Permenente. A blessing that we had prayed for and that I had fought hard for for about 2 years. When Calie came home after her 4 month NICU stay, I got about a week off of work to be with her and then she began going to day care. After about a month home she ended up sick and back in the hospital. That began me having to take time off from work (the job I had just started about 2-3 months before). From that point on she was in and out of the hospital every couple weeks to months, causing her day care to no longer accept her due to how fragile and ill she was all of the time. I was forced to have neighbors watch her or whoever I could find, and that was short lived. After just shy of a year at Kaiser I was given the ultimatum to resign or be terminated, due to me having no more time to take off and my boss felt that she had done all she could at the time to help me and my situation out. I chose to resign with hopes of being hired back on later down the line. That was one of the hardest decisions I had ever had to make and I was completely heartbroken. It was at that time we started to have financial troubles as we were down to only one income. It would be about a year before we were able to start recieving IHSS and SSI for Calie, but even then it was no where near my income while working for kasier.
When Kaiser let me go, I then began my photography buisness, which I was ecstatic to be able to do. My buisness has truely been a blessing, but we still have not had the means to persue the buisness full time. Although it has been a huge blessing and has helped us get by at times it is a very unpredictable buisness and buisness is never guarenteed.
Calie's condtion has worsened emensly over the years, especially the past two. She has had more hospital stays then I can count, has spent every holiday for the past two years in the PICU, and we have come to know just about every single hospital personal at Kasier Permenente (which has been a blessing in disguise). Over the past 6-7 months Calie's condition has worsened severly and she is now fully vent dependant. When this process started about 7 months ago calie spent about 1-2 months in the PICU at kasier, and was then transfered to a rehab hospital for a little over 3 months. She then was transfered to Kaiser LA, and then back to kaiser fontana. All of that just to be able to bring her home on the vent. She was finally able to come home, but that was short lived as after about 3 days home she was rehospitalized for pnuemnia and entrovirus. This one hit her hard and she just about didnt make it. That was one of the hardest phone calls to recieve as a parent. She did end up pulling through despite how poor her condition was, but has not been given too much longer to live. The next virus or cold she gets could be the one that takes her. Her body is fragile and tired and shes tired of fighting. Not only did that phone call scare us on the thought of losing her, but also in other aspects that will come along with that. Funeral expenses ect. To say the last half a year has been long, hard, and stressful would be a complete understatement. Not only has it taken a tole on us mentally, but financially as well. For those of you who recieve beneifts for children know that when they are hospitalized for more then 48 hours it has to be reported and the benifits then stop until the child is back home. Aside from what I make doing photography we have been soley relying on my husbands income to get by. On top of all of that, we had to move into a big enough house to accomidate Calie and her nurses and all of her equipment. All of this hit us at the same time, and due to all of the above factors we are really struggling. It breaks my heart and my ego to even write this out and as for help, but at this point I feel like this is our last hope before things start getting really bad for us. Although now that Calie is home (she came home today) it will still be weeks before our beneifts kick back in. Even with that we are so behind on Calies medical bills, medications (which medical no longer covers :( ) and bills here at home. On top of all that we have the constant thought of how we will pay for her future funeral expenses and everyhting that comes along with that. I know that we have a lot of support and prayer warriors when it comes to Calie which is why we have made the tough decision to ask you all for help. Anything at this point will be great help and we appreciate
anything that anyone is willing to donate. I have since started applying for jobs although I'm technically not supposed to work while receiving benefits
for Calie we have been left no choice. We hope that I will get a bite soon and that this can all be behind us and we can finally be caught up and no longer financially burdened. We are truly heart broken that things have come to this point, but we truely and deeply appreciate
all of the love and support from all of our friends and family members, as this is the toughest thing in life that we will ever go through and we couldn't make it through without all of the love and support.
With all of our love,
David, Ashley, Calie and our boys!
all of our options and have been recommended
by a few freinds to try and start a go fund me page. I will try my best to condence our whole story into a readable couple of paragraphs.
About 5 years ago our daughter Calie was born at 27 weeks extremely sick and premeture. We would soon find out that she was born with cCMV which is a nasty nasty virus that attacked her whole body including her brain. About a month into her 4 month NICU stay we started recieving the bad news that her brain wasnt growing. Upon further scans and tests it was discovered that she had severe brain damage and leukomalcaia. (deminished white matter of the brain). We were givin options as to if we wanted to proceed with life sustaining measures for her or let her pass. Before we had a chance to make that decision that no parent should ever have to make, she extubated herself (pulled her breathing tube out) and was able to sustain herself by nasal canula. At that point we had no chance but to fight for and with her. At that point, this hard hard journey of the last 5years of life began.
About a month into her NICU stay, I started my new job at Kaiser Permenente. A blessing that we had prayed for and that I had fought hard for for about 2 years. When Calie came home after her 4 month NICU stay, I got about a week off of work to be with her and then she began going to day care. After about a month home she ended up sick and back in the hospital. That began me having to take time off from work (the job I had just started about 2-3 months before). From that point on she was in and out of the hospital every couple weeks to months, causing her day care to no longer accept her due to how fragile and ill she was all of the time. I was forced to have neighbors watch her or whoever I could find, and that was short lived. After just shy of a year at Kaiser I was given the ultimatum to resign or be terminated, due to me having no more time to take off and my boss felt that she had done all she could at the time to help me and my situation out. I chose to resign with hopes of being hired back on later down the line. That was one of the hardest decisions I had ever had to make and I was completely heartbroken. It was at that time we started to have financial troubles as we were down to only one income. It would be about a year before we were able to start recieving IHSS and SSI for Calie, but even then it was no where near my income while working for kasier.
When Kaiser let me go, I then began my photography buisness, which I was ecstatic to be able to do. My buisness has truely been a blessing, but we still have not had the means to persue the buisness full time. Although it has been a huge blessing and has helped us get by at times it is a very unpredictable buisness and buisness is never guarenteed.
Calie's condtion has worsened emensly over the years, especially the past two. She has had more hospital stays then I can count, has spent every holiday for the past two years in the PICU, and we have come to know just about every single hospital personal at Kasier Permenente (which has been a blessing in disguise). Over the past 6-7 months Calie's condition has worsened severly and she is now fully vent dependant. When this process started about 7 months ago calie spent about 1-2 months in the PICU at kasier, and was then transfered to a rehab hospital for a little over 3 months. She then was transfered to Kaiser LA, and then back to kaiser fontana. All of that just to be able to bring her home on the vent. She was finally able to come home, but that was short lived as after about 3 days home she was rehospitalized for pnuemnia and entrovirus. This one hit her hard and she just about didnt make it. That was one of the hardest phone calls to recieve as a parent. She did end up pulling through despite how poor her condition was, but has not been given too much longer to live. The next virus or cold she gets could be the one that takes her. Her body is fragile and tired and shes tired of fighting. Not only did that phone call scare us on the thought of losing her, but also in other aspects that will come along with that. Funeral expenses ect. To say the last half a year has been long, hard, and stressful would be a complete understatement. Not only has it taken a tole on us mentally, but financially as well. For those of you who recieve beneifts for children know that when they are hospitalized for more then 48 hours it has to be reported and the benifits then stop until the child is back home. Aside from what I make doing photography we have been soley relying on my husbands income to get by. On top of all of that, we had to move into a big enough house to accomidate Calie and her nurses and all of her equipment. All of this hit us at the same time, and due to all of the above factors we are really struggling. It breaks my heart and my ego to even write this out and as for help, but at this point I feel like this is our last hope before things start getting really bad for us. Although now that Calie is home (she came home today) it will still be weeks before our beneifts kick back in. Even with that we are so behind on Calies medical bills, medications (which medical no longer covers :( ) and bills here at home. On top of all that we have the constant thought of how we will pay for her future funeral expenses and everyhting that comes along with that. I know that we have a lot of support and prayer warriors when it comes to Calie which is why we have made the tough decision to ask you all for help. Anything at this point will be great help and we appreciate
anything that anyone is willing to donate. I have since started applying for jobs although I'm technically not supposed to work while receiving benefits
for Calie we have been left no choice. We hope that I will get a bite soon and that this can all be behind us and we can finally be caught up and no longer financially burdened. We are truly heart broken that things have come to this point, but we truely and deeply appreciate
all of the love and support from all of our friends and family members, as this is the toughest thing in life that we will ever go through and we couldn't make it through without all of the love and support.
With all of our love,
David, Ashley, Calie and our boys!
Organizer
Ashley Mora
Organizer
Yucaipa, CA