
Caleb's Medical Fund
Our son Caleb was born on April 26, 2008, along with his twin brother Christian. From the moment he was born, Caleb’s smile and his sweet face forever stole my heart. When Caleb was 3 months old, he suffered from seizures, which resulted in cerebral palsy. Ten years have passed by since that frightful moment. In that 10-year period, our Caleb has had to undergo many tests and procedures, including a tracheostomy and PEG tube placement for nutrition. He remains chronically wheelchair bound. Yet, Caleb endured it all with this ear-to-ear, heart-melting smile of his. He is the bravest little boy I have ever met in my life. He never once cried.
But during this past week, on Thursday June 14th, 2018, Caleb cried for the first time. His home health nurse, who has assisted with his day-to-day care for years, was trying to pick him up and transfer him from the bed to his wheelchair, when she must have tripped on something and fell to the floor, dropping Caleb in the process. His head hit the corner of a wooden dresser, fracturing his maxillary facial bone. To make matters worse, the nurse herself fell onto my son’s body, with the full weight of her body pressing down on him, which caused a fracture to his pelvic bone. When I heard the commotion, I ran downstairs, only to find my son limp on the floor, his head twisted to one side. There is absolutely no word in this world to describe the feeling in a mother’s heart at the moment when she thought she has lost her beloved child. But then I saw the tears streaming out of Caleb’s eyes (he is nonverbal and does not make any sound), and I drew a breath of relief. But oh, the tears that came out of his eyes for the very first time since he was diagnosed with CP, those tears broke my heart because I knew then he must have been in excruciating pain.
Caleb was brought to Children’s Healthcare of Atlanta (CHOA) at Egleston, and as of Saturday June 15th, he successfully underwent pelvic surgery. As for his facial bone fracture, at this time the doctors have chosen the watchful-waiting approach, hoping the bone would eventually heal on its own. If there are any signs of nerve damage to the eye, Caleb may need to undergo further surgeries later.
Only those closest to us truly understand our financial situation. My husband recently started a new job, and between that and our other two little boys at home, it is difficult for him to be at the hospital everyday with Caleb. Therefore, I had to quit my job to be with my son. Going forth, I am not sure what we are going to do for long-term care, whether I will have to quit working permanently or not. After what has happened, I am so traumatized just thinking about home health nurses.
The medical care that Caleb has required in the last 10 years, there is no way we could afford it even if we were to work every single day for the rest of our lives. We could not have gone this far without God as our merciful Provider. No matter what happens, I have faith that God has given us Caleb for a special purpose, and that He has a unique plan in store for this child’s life.
If you can find it in your heart to donate any small amount to Caleb’s medical fund, we thank you from the bottom of our hearts. And even if you do not donate, please help us by continuing to pray for Caleb’s recovery, and for our family to remain strong and faithful in this difficult time.
Thank you,
Sang & Hue