At his routine pediatric rheumatology appointment on March 12th they found his lungs are now affected. He has had a lung CT and bronchoscopy but will also be having an open lung biopsy because they are quite certain he has Interstitial Lung Disease.
There are only 50 children in the country that have SJIA and lung disease which probably now includes Caleb. Because it is so rare there is very little research and not a clear way to treat both. His current treatment is to take prophylactic antibiotics. Research has shown that the mortality rate is decreased with the use of these antibiotics.
Please consider giving a donation to support the medical expenses as well as SJIA research for treatment and cures.
- Tiffany Sanda
- Emilee Eastes
- Suzanne Watne
Organizer and beneficiary
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more