Hey, My name is Amanda Farrar, I am junior in high school and I struggle with a disability. I have osteogenesis imperfecta (OI) a brittle bone disease. I have had 22 surgeries, and am not supposed to walk by the age of 17. I have broken nearly every bone in my body, and cast are one of my best friends.
It has been a struggle, yet I wouldn’t of asked for it any easier because I wouldn’t be who I am today. My disability doesn’t define me, it is only part of me. I am a avid part of my school community; I am the president of the peer mentoring. I work very hard academically, I am very thankful I have teachers and staff who work with me, to make me more successful. I want to be able to learn and have the same academic opportunities as others around me.
My whole life I have found myself with numerous challenges, I was never able to participate in a lot of activities, I can not play any sports and if I did they would have to be adapted in several ways, I can’t run or jump, my legs hurt almost constantly and if I fall I almost always break a bone. My disability has put up a lot of boundaries for me. I tried riding a bike, fell and broke my femur. The day I was baptised as I was walking out of the church I had fallen and broken my left wrist, forearm and my femur also the day before my birthday. I have struggled with this since the age of 5, when I was diagnosed. I attend adaptive adventures as much as possible, to be able to be as active as possible. My disability has not stopped me, I went snow tubing when I was 7 and broke my femur. I ride a 4 wheel bike when I am with adaptive adventures, as well as wake and paddle board. I did a 5K about two years ago. The world may have barriers for me, I will always find away over them. My next adventure is a trip with school to Rome, Italy. My mother and I are attempting to raise the money to go, my mother going to be able to help me and support me when I need it. I need her there to be able to make me more comfortable, to help support me, if I need to rest she would stay with me for that allotted time and if I were to get hurt to have her there to help with all of the medical that would be followed. My mom is also one of my best friends, because she always helps me when I am hurt. I really want to go see the beauty of Rome before I no longer have my legs. We will be going into the coliseum and on the Spanish Steps, which I would need to be able to walk for. If this was the first and last trip I had before I couldn’t walk anymore then let it be the best trip I have ever been on.
We don’t have enough money to be able to swing the trip without help. With medical bills, and the cost of the insurance every month we wouldn’t be able to swing the cost and still pay the bills.
I have always dreamed of leaving the United States, I have always dreamed of going to meet new people, see new absolutely amazing things. I want to travel, I want to step into Rome and say “I made it.” I want to learn everything I can about music, writing, genetics, psychology, culture, literature, history, people, and the world. I want to find more of myself in different places.
Please support my mom and I on going to Rome for this trip. Please know how much your support and love means to my family and I. Thank you in advance for reading my story, thank you for supporting me, and if you choose to donate thank you. There are no word in the world for me to use to demonstrate how important this is to me and how much I appreciate your donation to help me get to Rome before my legs no longer support me.