
Help us pay medical bills
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As many of you know Hannah has been in and out of the E.R as well as doctors appointments for the last 3 weeks. Unfortunately it’s not slowing down either and is only getting worse. ‘It’ still doesn’t have a name which means we’re going to be continuously searching until we have an answer of some kind. At this point she has been out of work for 3 weeks and I have to start school next week in order to get the degree I need so that if she can’t work anymore there’s a way for me to provide fully. This wouldn’t even be necessary for us to scrape by if her job would pay her, however they won’t. Instead they’re waiting for her to quit so that she can not collect unemployment. We’re in a very tight space and there’s not much wiggle room. Currently she can’t walk without passing out, her arms and legs are numb and feel like she’s being stabbed, she’s nauseous all the time, raging headaches, muscle spasms and weakness, loss of appetite, and she can BARELY walk from the bed to the bathroom without me basically carrying her there. This isn’t her. She doesn’t ever stop moving and whatever is happening is stopping her from moving. We’re both devastated but we will not stop until we have some sort of answer. Asking for help isn’t something either of us will ever do, but when it comes to keeping her alive and healthy? I’ll do whatever I need to. If all you can spare is $2 it’s greatly appreciated and if you can’t afford to help, just share it! Thank you so so much for even taking the time to read this♥️
Update: MRI for her head and cervical spine is on the 29th, currently other tests that have been ordered are in the following.
-Nerve Conduction Study
-Myasthenia Gravis Test
-Lyme Disease (covering bases to take it off the list)
-Postural Orthostatic Tachycardia (POTS) Tilt Test
Update 10/19/2022:
-MRI showed a bulged disc in her cervical spine but it is not compressing anything
-Nerve conduction study showed as normal according to the neurologist (however several other doctors looked over it and say it is not normal)
-Myasthenia Gravis was negative
-Lyme Disease was negative
-POTS came back as borderline POTS and also confirmed dysautonomia
-New tests for GI tract are ordered and the GI strongly believes that gastroparesis is on the cards
-The GI also believes that the cystic fibrosis gene mutation is another diagnosis in the cards
-Rheumatology appointment isn’t until May 1st of 2023 however several of our doctors are pushing for a sooner appointment
-There is also a new swallow study ordered for Friday 10/21
-We also have a endoscopy scheduled for late December of this year as well
-Seizures have become more frequent and continue to be ignored by our current neurologist.
We’re hoping to get a new neurologist soon and holding hope to find answers soon. We’re still struggling with getting food, gas, and basic necessities to live due to only having one income which isn’t even enough to fully cover rent let alone medical bills. Please continue sharing and donating if you can. Hannah is also trying to work on getting her story worldwide and proposing a bill to help people who are struggling with undiagnosed chronic illnesses. We appreciate all your support and kind words, let’s keep it going!
Organizer
Maddie Santeusanio
Organizer
Middletown, PA