- J
- L
Update!
Our sweet boy got his diagnosis today.. to hear that your child has a very rare, terminal disease is definitely not easy, there’s lots of emotions. This disease as some of you may know, has caused heartbreak in our family multiple times before.. but thankfully with my little guy, we were able to catch it in time to where we can do certain medications that can truly help him in lots of ways, so I’m grateful for that.. thank you everyone who has been helping us, we truly appreciate the help and all the love and prayers. He’s thriving and doing well at the moment, he’s one of the best eaters in the NICU! He’s getting so big. Thanks again to everyone, now we just wait on the day we get to leave and go home!
Hi everyone, as some of you may know our son was admitted to the NICU at 5 days old for E.Coli Meningitis, thankfully we caught it in time to treat that. But while he has been in the nicu, they have started looking into the strong possibility of him having a terminally ill disease that runs in the family. We are trying to stay strong & remain hopeful, but being away from home has been very hard on us, mentally, physically and financially, if anyone could help it is very much appreciated, but if you can’t, prayers are very very much needed and appreciated!
Our sweet boy got his diagnosis today.. to hear that your child has a very rare, terminal disease is definitely not easy, there’s lots of emotions. This disease as some of you may know, has caused heartbreak in our family multiple times before.. but thankfully with my little guy, we were able to catch it in time to where we can do certain medications that can truly help him in lots of ways, so I’m grateful for that.. thank you everyone who has been helping us, we truly appreciate the help and all the love and prayers. He’s thriving and doing well at the moment, he’s one of the best eaters in the NICU! He’s getting so big. Thanks again to everyone, now we just wait on the day we get to leave and go home!
Hi everyone, as some of you may know our son was admitted to the NICU at 5 days old for E.Coli Meningitis, thankfully we caught it in time to treat that. But while he has been in the nicu, they have started looking into the strong possibility of him having a terminally ill disease that runs in the family. We are trying to stay strong & remain hopeful, but being away from home has been very hard on us, mentally, physically and financially, if anyone could help it is very much appreciated, but if you can’t, prayers are very very much needed and appreciated!