Butterfly Warrior
Donation protected
Hello Everyone,
These past few months have been very tough on everyone and my niece Destiny is no exception. She was born with a condition called Epidermolysis Bullosa. A rare genetic connective tissue disorder. Within the last month Destiny's health has taken a toll for the worst and she has been hospitalized. Both her parent have stopped working and have been by her side this whole time, making the best out of one of the worst situations a parent can find themselves in. Destiny started losing a significant amount of weight along with having low energy levels which we found out was due to heart Failure. With that came many other complications, one of which is her lungs retaining fluid. Unfortunately her body is not strong enough to withstand surgery or transplant. At this point we do not know whether Destiny will make it through this or not, but she is fighting to live like the warrior she is. Please take advantage of the time you have with your loved ones because you might wake up one day and they will not be there.
We ask for a bit of help for the family, they are mentally exhausted and not in the right head space for anything right now. Hospital expenses and bills will start adding up, So i ask in their place if there is anything anyone can help with it will be greatly appreciated but if you cannot donate, stop by destiny's page and send her some love. For all you beautiful people that follow her journey on IG, we want to thank you. Your wishes make her day and your prayers help give the family hope.
IG: 0ur Destiny
Parents: David / Diane De Anda
She misses her friend Kane, he is always by her side.
If you want to learn more about EB click the link below:
https://www.debra.org/about-eb/eb-depth
These past few months have been very tough on everyone and my niece Destiny is no exception. She was born with a condition called Epidermolysis Bullosa. A rare genetic connective tissue disorder. Within the last month Destiny's health has taken a toll for the worst and she has been hospitalized. Both her parent have stopped working and have been by her side this whole time, making the best out of one of the worst situations a parent can find themselves in. Destiny started losing a significant amount of weight along with having low energy levels which we found out was due to heart Failure. With that came many other complications, one of which is her lungs retaining fluid. Unfortunately her body is not strong enough to withstand surgery or transplant. At this point we do not know whether Destiny will make it through this or not, but she is fighting to live like the warrior she is. Please take advantage of the time you have with your loved ones because you might wake up one day and they will not be there.
We ask for a bit of help for the family, they are mentally exhausted and not in the right head space for anything right now. Hospital expenses and bills will start adding up, So i ask in their place if there is anything anyone can help with it will be greatly appreciated but if you cannot donate, stop by destiny's page and send her some love. For all you beautiful people that follow her journey on IG, we want to thank you. Your wishes make her day and your prayers help give the family hope.
IG: 0ur Destiny
Parents: David / Diane De AndaShe misses her friend Kane, he is always by her side.If you want to learn more about EB click the link below:
https://www.debra.org/about-eb/eb-depth
Organizer and beneficiary
Nathalie Bernal
Organizer
Long Beach, CA
Diane De Anda
Beneficiary