On June 1st I had an appointment with a neurologist from the Mayo Clinic Jacksonville, Florida. He ran an EMG test and diagnosed me with Bulbar Palsy, a Neuromuscular Degenerative disease that affects speech and swallowing. Currently I have only the Upper motor neuron , involvement, otherwise it would be ALS. It has progressed to the point where my family can no longer understand what I am saying.
There is no cure and at this point I just want to prolong my quality of life. I have some swallowing issues, and at the speed of the disease I will likely need a feeding tube in a month or so. Next it will affect my breathing.
So, if stem cell treatments can give me 6 to 12 months more time, to see my second grandchild be born in January, I would like to have it.
The cost is 20k, for the treatment and that does not include the cost of the hotel and transport. The whole process takes 17 days.
I am planning on going on October 18th, my Dad is paying for the treatmeant and airfire and I would like to be able to pay him back.
My wife of almost 30 years, says she misses my voice and talking to me. We still have faith, in a miracle healing, but are living one day at a time.
- Douglas & Cheryl Nofziger
- Shane Daly
- Rick Stambaugh
- Mark Soberman
- Troy Noonan
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