
Bulbar ALS has taken Beth Lynes' voice
Donation protected
My sister, Beth Lynes, has been diagnosed with ALS.
Since there is no cure for Bulbar ALS, we have been researching functional and homeopathic ways to slow and reverse the outcome. but the symptoms of this disease have progressed. We have tried multiple treatments and devices to attempt to slow the progression of the disease, however, they have gotten worse.
In doing our due diligence and research into innovative new treatments and technologies, and speaking with physicians that treat ALS, we would like to try a new experimental therapy called exosomes.
Exosomes are nanoparticles (extravesicular) present on stem cells. The exosomes used in the treatment are derived from Wharton's Jelly, which is found in the unbilical cord.
It is frozen till it is administered by IV to the patient. The exosomes have been shown to have anti-inflammatory effects, repair peripheral nerve damage, decrease cell death, regain healthy neural cells, and stimulate functional axonal regeneration. There have been cases of other ALS patients that have seen slowing and even reversal of symptoms for ALS. She will need 3 IV treatments at $15,000 each, plus other expenses.
Thank you for considering helping her find her voice again.
Organizer and beneficiary
Annmarie DeMattia
Organizer
Fletcher, NC
Beth Lynes
Beneficiary