In February 2017, our lives were forever changed when we learned that our sweet two year old Brynn was diagnosed with a highly malignant and rare form of brain cancer, Anaplastic Ependymoma. She had a successful surgery, 6 weeks of radiation to her brain where she dressed-up as a princess each day, and has been monitored ever since to ensure that her tumor stayed gone. She bounced back amazingly and was a truly normal kid taking dance lessons, participating in soccer, swimming, and most recently learning karate with her 6 year old brother. We were convinced that she had beaten cancer....
A look into Brynn's past year:
On a last minute weekend trip to Pennsylvania to visit Elmo and friends at Sesame Place, now 4 year old Brynn became oddly ill and was evaluated at Children’s Hospital of Philadelphia (CHOP) where we found that her brain cancer had relapsed, this time to a different part of her brain.
It is our worst nightmare come true: our Brynn now has metastatic brain cancer and there is very little chance it can be cured.
CHOP is one of the leading hospitals in the world. We believe that she was meant to be in Pennsylvania this weekend to be close to these healers and helpers. On Tuesday 10/30/18, she had another successful surgery where all visible tumor was removed from an incredibly delicate area of her brain. She woke up from surgery telling jokes, moving her body, and with all faculties in tact – another miracle!
Brynn now faces another huge fight as we explore treatment options to give her the best chance at living a long, healthy life.
Her family faces numerous challenges in this second battle for their daughter’s life. Their family lives in RI and treatment may involve far distance travel and follow-up care out-of-state. This will include lodging & travel expenses, and additional medical bills as they seek the best possible care that insurance may not cover.Become a part of #BrynnsArmy & help support #BrynncessTheBrave.
Your positive thoughts, prayers, and contributions along with Brynn’s amazing strength and resilience gives us all hope that she will overcome yet another battle. Let’s make sure that Jessica, Jeremy, Braeden and Brynn know they are not alone in this fight.