Brycen 2022

It is shocking and infuriating that we had never heard of CMV until standing in the NICU on Aug 2, 2019, hours before our son Brycen John passed away. We have also since received incorrect information on CMV from many sources. Thankfully, the National CMV Foundation has provided us constant support and knowledge.

 

We truly cannot imagine where we'd be without this organization and are therefore incredibly passionate in raising #cmvirus awareness and in raising donations for the NCMVF. CMV is the #1 infectious cause of birth defects and developmental disabilities in the US. Each year, 30-40,000 children are born with CMV resulting in 400 deaths and 6-8,000 children with permanent disabilties, in the US alone. More children will have disabilties due to CMV than other well-known infections and syndromes including Down Syndrome, Fetal Alcohol Syndrome, Spina Bifida and Zika. Further, infants are only tested if there is a reason to suspect CMV and a baby must be tested within 21 days of birth to confirm CMV is congenital so there are likely many children that go undiagnosed.

 

We ask that you consider making a donation to NCMVF in memory of our beautiful baby boy Brycen, our B-Boy, whom we miss every single day. Donations to the National CMV Foundation will aid in assisting with their mission to:

 

1. Empower community networks to facilitate CMV conversations to help more people know about CMV before it's too late

 

2. Influence CMV research priorities regarding CMV prevention, treatment, and intervention

 

3. Pass CMV legislation

 

4. Advocate for a CMV vaccine

 

For more information please visit www.nationalcmv.org.