Brixton STRONG DUCK Cancer.

7/27/25

Good Morning, friends, family and Brixton fans. Brixton has been in the hospital since Friday. We unfortunately received a phone call that once again has electrolytes particularly phosphorus and potassium have completely dumped. The insanely amazing hospitalist that was on staff finally pieced things together. She said it’s been plaguing her thoughts for a while That there might be some sort of a syndrome going on. I happened to run into one of my dear friends, David Rosansky, MD, on my way to lunch who happens to be a Nephrologist , he asked me how Brixton was doing and what was happening, and I explained to him that his Electrolytes were once again plummeting. Thankfully , he knew exactly almost spontaneously what it was, and unfortunately, Brixton has developed acquired Fanconi syndrome. This comes from the chemotherapy, most likely and the hit he is taking on his kidneys. Brixton will be in the hospital probably through at least the beginning of the week. It’s just going to depend on how fast his Kidneys And electrolytes can get better. Please keep Brixton in your thoughts and prayers. We can see the tired starting to weigh on him, but he’s starting to be his little trooper self again as of yesterday sending much love to all of you continually watching his journey.

Friends and Fundraisers-

we’ve reached a very busy time in our treatment plan. Starting the 21st of July we will begin our radiation journey for 6 weeks. What this means is, Mom will be driving back and forth to OHSU at least once per day for 6 weeks.

We’re really hoping to get some additional funding for gas and car maintenance.

I have a couple ideas, once being a spaghetti fundraiser. Any ideas that any of you have, or suggestions, please send them my way. Any fundraising venues that you think might be of help, we would love your feedback.

UPDATE FROM JENNA (Mom)

Brixton update- Please read full update. It is confirmed via MRI that what the sarcoma boards thought to be potential disease is in fact more disease. Our oncologist immediately got him on a new protocol when we suspected said potential disease. his treatment plan is working! There is no microscopic disease found in the perineal area and the tumor by the bowel (“new disease”) is shrinking!! Prayers and treatment are working! Our oncologist is going back to the tumor board to gather information on possibilities and the best potential outcome moving forward. The other subtype of rhabdomyosarcoma can develop in the lungs (our CT shows that is also STILL CLEAR). We will be doing a brain MRI/CT here in a couple weeks as precautionary due to things I’ve noticed and our treatment plan already having to change. ERMS (embryonal rhabdomyosarcoma) is extremely rare and aggressive with less than 400 cases diagnosed a year. Our oncologist feels the more information the better. I appreciate and thank you so much for your prayers. We just finished another round of chemo (3 chemos) tonight and will be overnight for observation.

5/7/25

Hello Friends and Donors,

It’s been a very trepidatious road, unfortunately it’s going to continue to be that way for some time.

We were informed yesterday that essentially we have to pick the less of two evils with Brix, and we’re not sure what to do. This is going to include a very long recovery process whether we choose surgery- which could lead to a colostomy bag, or radiation which will affect his growth plate, potentially causing breaks and dislocations.

This news was incredibly devastating to hear. How do you choose one of those for your child and grandson???

Brixton is trying his best to be his happy self, but the chemo is a very strong 5 day everyday inpatient treatment. He’s been screaming in pain and nausea. We are praying this last cocktail they suggested, works.

If you can please find it in your heart to donate and or just share Brixton’s story, we would be forever grateful.

#BRIXTONSTRONGKEEPTHEFIGHT

4/17/25

Good Evening Friends,

Today was a very rough time for the parents, and immediate family.

The kids took Brixton to his 2nd chemo visit. They were not informed prior that they would also be seeing an oncologist. I will keep a long story short. Brix’s treatment plan has tripled in time. We were originally told that Chemo would be 6 months and possible radiation. The Tumor Board at DCH met today and Brix’s case was again reviewed. The oncologist is not happy at all and she herself was visibly upset giving this unexpected news. We are now looking at 18 months of chemo, in conjunction with radiation. This includes a radical chemo treatment and one week a month Brix will be inpatient for 5 days. They have also added 2 additional chemo drugs. The ball was dropped somewhere and the Oncologist was furious. The first 2 years of his life, where he should be learning to talk, learning to walk, run, play, roll around in the grass, feed the ducks, and just have fun, now has major constraints. Had I known there would be this type of visit today, I would have been there. The kids felt completely sideswiped.

Now, the incredible thing about something like this happening, that is so terrorizing and incredibly unfair- is that Brix is beyond a happy baby. He’s now laughing!!! And guess what!!??? I got the first laugh. It was the most

miraculous gift I could have ever asked for. He’s cooing, smiling, with his beautiful eyes that literally twinkle like a cartoon.

Please, please help spread the word. Sharing in this instance is caring. Shout it to the rooftops. I have a team member that has contacted the Armenian Church in Hollywood, a friend that has people praying in Israel, an Army base in Georgia and countless local prayer groups.

Brix’s next chemo is next Friday. Let’s please hit the share button on your pages and see what magic can happen. I see magic every time I look at my grandson. I can’t even begin to articulate or formulate the words of thanks that I need to convey. Thank you so much, from the entire family and most importantly Brixton. You’re an inspiration to us all and keep us going.

Much love,

The Duck Cancer Crew

4/10/2025

UPDATE

Brixton's surgery proved that although the scans didn't pick it up, there is still cancer internally in his sphincter. As you might imagine, this just doubled his treatment plan and is likely adding radiation to the list. I can't tell you as his grandmother how guilty I feel. I have battled cancer 4x due to my MRE11A and Chex2 variant mutation. It was found in Brixton's tumor. The guilt is unreal.

Brixton will require 3 rounds of chemo per month, with 1 waiting week. We had his first round on 4/7/2024 and it was unbearable to watch. He is a baby, and can't tell what is happening. He was thrashing around, screaming, kicking, until I told the nurse to give him something. Folks, this is indeed going to be a very long and hard road for our Warrior Brixton. I can't thank those enough who have contributed to this point. You are ever so appreciated and loved. I would love to continue the prayers, but would also like to open the donations back up, as this is going to be much longer than originally expected. Anything helps. It is sincerely appreciated.

UPDATE!!!!!!!

THERE ARE NO MASSES ANYWHERE ELSE THAT THEY CAN SEE. PRAISE GOD!!! The last picture was taken after the parents( my son and his girlfriend) received the news.

We have enough funding now that they should be able to completely be funded through the chemo. Thank you all so much for your prayers, your donations and your support. I will leave the fundraiser up for prayers. No need to donate anymore funding. Thank you, thank you so much. I will update the page after we have surgery tomorrow and meet work the Pediatric Oncologist.

Meet Brixton,

Brixton is almost 3 months old. When you have a baby, it appears once they’ve come out with 10 fingers and 10 toes that everything's gonna be OK. However, in Brixton's instance, it isn't. Brixton has a very rare form of cancer; it is called ERMS. Brixton will be having emergency surgery on Tuesday and PET scans on Friday to find out how advanced his cancer is.

As you might imagine during this time, the parents are being pulled away from work and costs are incredible. There is no way for Mama to work during this time for obvious reasons, and she does not have a job that qualifies for disability.

If you can find it in your heart to help this family through this incredibly tumultuous time, even $5 will help.

There are five other brothers and sisters in this beautiful family, and we’re doing all we can right now to try to keep them whole.

Also, if you’re not in a place to support right now, if you would be willing to pray, that would be incredibly helpful. Thank you, God bless.