Bringing Hope to Aya: Our Journey Against Cornelia de Lange

From the moment Aya entered this world, she embarked on a journey fraught with unimaginable challenges. At just 4 years old, her tiny body bears the weight of Cornelia de Lange Syndrome, robbing her of the ability to walk, talk, or even eat by mouth.

Every breath is a struggle as her oxygen levels fluctuate, and her days are spent in a cycle of hospitals and treatments. She relies on specialized milk, costly medications, and the constant maintenance of feeding and other essential tubes just to survive.

Despite the pain and hardship, Aya's spirit shines bright. She courageously endures endless medications, growth hormones, and grueling therapy sessions week after week, her determination unwavering.

As her father, it breaks my heart to witness her suffering, but I refuse to lose hope. I reach out to you, with tears in my eyes and a plea in my heart, to lend a helping hand.

Your support means more than words can express. Every donation will ease the burden of hospital bills, provide vital medications and nutrition, and ensure Aya receives the therapy she desperately needs. Together, let's give my precious daughter the chance to grow, thrive, and continue writing her story alongside her loving family. Your generosity can keep her with us on this earth, where she belongs."

Here you will find the link to some of her monthly needs, from medication to nutrition, and thearpy.

reaching this goal will cover all of aya's medical bills for 2 years.

dropbox of her monthly bills