Baydon's Journey to Breathe

Most of you may not know me, but I am Baydon's Brother.  My brother Baydon is now in the END STAGE OF CYSTIC FIBROSIS.  This means that he is now faced with the decision to have a double lung transplant.  When you are put on the list for a transplant, you need to travel to Toronto for 3 days a week to keep your body conditioned for transplant.  You also have to be within 2 hours of the Toronto Hospital at all times.  Once the transplant takes place, Baydon and Mom will need to relocate to Toronto for at least 3 months for all the appointments and rehab, that means they will need to rent an apartment within 15 minutes of the hospital.   While you are in the process before, during and after the transplant you are required to have a support person with you at all times.  So, if you are a two income family, you will be down to  one income to keep all your own household running.
Baydon was diagnosed with CF when he was 5 months old.  His type of CF affects his lungs and his digestive.  In order to keep him healthy, he was required to do upto 4 ventolin masks a day, take over 40 pills a day, and do his breathing physio up to 3 times a day.  This was before his lungs started to shut down.  The end of October was when he almost died because of the deterioration of his lungs.  He coughed up about 3 cups of blood in about 10 minutes.  That was really scary for him and my family.  He is now on 5 IV meds, 3 oral antibiotics and 1 inhaled antibiotic to keep him healthy enough to receive new lungs, this is ontop of everything else he needs to do.   The thing about transplant is that you have to be sick enough, but healthy enough to receive them.  My Mom is the one that administers his IV / Oral and inhaled medications everyday trying to keep him in a healthy enough state to receive the transplant.   Just imagine, to be considered for a lung transplant your lung function must be below 30%. 
The problem with CF is that the people that have it look normal.  You cannot tell by looking at them that they are sick at all.  Even though they are struggling to breathe from the time that they are born.   The years and years of lung infections, mucus build up and bad bugs cause the lungs to stop working.  Unfortunately the end result of CF is often a double lung transplant to extend the lives of people with CF.  IT IS NOT A CURE, so by the time you need a lung transplant you are not well enough to survive without one.
So why am I setting up this page, most people don't understand the cost that the family has to worry about.  The cost of re-locating to Toronto, residing their because you are not hospitalized all the time and you have to be close to the hospital, meals, transportation back and forth to the hospital are some of the costs that the family needs to cover.  Also, keep their household finances covered.  When you have a family member that requires a transplant you should not have to worry about where you are going to get this money from. 
Here's where you can help.  Please click on the donate button and make a small contribution.  Every little bit helps!!  My family should not have to worry about where they are going to get the finances to keep everything going, they should only have to worry about keeping their son healthy enough to receive his NEW LUNGS. 
Our family thanks you for all the help you give, and we thank each and every one of you for reading our story!
We will keep you posted on the updates of BAYDONS JOURNEY TO BREATHE! 
Let's hope you has a chance at a new full life!!

THANK YOU!!