Please help donate to ALS and our worthy cause
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Hello all. Some sad and yet some inspiring news to share media wide. In December 2018 my husband Jonathan Greenfield was diagnosed with ALS, the same disease that took his father Hy Greenfield’s life some several years back. Strangely, this wasn't mere coincidence that both father and son were affected by the same illness. After Hy's passing, Jonathan and his siblings learned that their dad was a carrier of a mutated C9 gene, a mutation both he and his brother Seth inherited, which eventually lead to complications associated with ALS.
From close and afar, people have pegged Jonathan as a health nut and an unfiltered good guy who really LOVES to talk. Even with his slur and hobble he still maintains the same zeal and sense of humor. Jonathan is a true people person. Jonathan is also a verite film maker, jujitsu-er, tri-athalon-er, musician, surfer, BMX-er, tea purveyor and teacher. What's chilling and ironic is that Jonathan was THAT guy at the forefront of all the super catchy ice bucket challenges.
To say this is the hardest thing we've ever had to face is a gross understatement. How could anyone every imagine such a thing? Once we were able to digest this information and move forward a bit, we were determined to raise funding and awareness. Jonathan and I started a non profit 501(c)(3), and while similar organizations do exist, it was important for us to have a pulse and authority over where funding is allocated. Moving the needle quickly is our goal. I think about our kids' future (ages 10, 8 and 6) and this is the only thing we can do to assure them a bright road ahead. It's my mission in life.
The medical staff at Mass General Hospital (Boston) is at the top of it's game, the ground zero for ALS research. This is where Jonathan receives his care, also where ongoing and progressive clinical trials are being held. We want to support these efforts through Breathe 4ALS funding.
Where insurance companies are lacking, Breathe 4 ALS wants to support those less fortunate by assisting with medical equipment, ambulation devices, home care, etc.
Lastly, our objective is to teach ALS patients how to 'breathe' through the life changing Wim Hof breathing method.
Have you heard of the Iceman? Check out www.wimhofmethod.com.
In record time, and with the help of our Westport friends who are now like family (framily), we have been able to establish our first fundraiser. It will be held at the newly renovated Museum of Contemporary Art (MoCA) on 10/17. We have SOLD OUT of tickets but more events will follow.
Prayers matter, but making a tax deductible DONATION will go further. Please visit our website www.Breathe4als.org for more info on our organization or how to donate.
-or you can donate via Venmo: @Breathe-ALS
-or mail a check to:
Breathe 4ALS.org
PO Box 705
Westport, CT. 06881-0705
It’s heartening to know that research is so close to finding a cure- maybe 5 years away. Your donation can help us ensure this reality.
For those who wish to private message me, please do. We are focused on spreading the word and finding a cure for this terrible disease that affects too many.
With Love,
Iris
From close and afar, people have pegged Jonathan as a health nut and an unfiltered good guy who really LOVES to talk. Even with his slur and hobble he still maintains the same zeal and sense of humor. Jonathan is a true people person. Jonathan is also a verite film maker, jujitsu-er, tri-athalon-er, musician, surfer, BMX-er, tea purveyor and teacher. What's chilling and ironic is that Jonathan was THAT guy at the forefront of all the super catchy ice bucket challenges.
To say this is the hardest thing we've ever had to face is a gross understatement. How could anyone every imagine such a thing? Once we were able to digest this information and move forward a bit, we were determined to raise funding and awareness. Jonathan and I started a non profit 501(c)(3), and while similar organizations do exist, it was important for us to have a pulse and authority over where funding is allocated. Moving the needle quickly is our goal. I think about our kids' future (ages 10, 8 and 6) and this is the only thing we can do to assure them a bright road ahead. It's my mission in life.
The medical staff at Mass General Hospital (Boston) is at the top of it's game, the ground zero for ALS research. This is where Jonathan receives his care, also where ongoing and progressive clinical trials are being held. We want to support these efforts through Breathe 4ALS funding.
Where insurance companies are lacking, Breathe 4 ALS wants to support those less fortunate by assisting with medical equipment, ambulation devices, home care, etc.
Lastly, our objective is to teach ALS patients how to 'breathe' through the life changing Wim Hof breathing method.
Have you heard of the Iceman? Check out www.wimhofmethod.com.
In record time, and with the help of our Westport friends who are now like family (framily), we have been able to establish our first fundraiser. It will be held at the newly renovated Museum of Contemporary Art (MoCA) on 10/17. We have SOLD OUT of tickets but more events will follow.
Prayers matter, but making a tax deductible DONATION will go further. Please visit our website www.Breathe4als.org for more info on our organization or how to donate.
-or you can donate via Venmo: @Breathe-ALS
-or mail a check to:
Breathe 4ALS.org
PO Box 705
Westport, CT. 06881-0705
It’s heartening to know that research is so close to finding a cure- maybe 5 years away. Your donation can help us ensure this reality.
For those who wish to private message me, please do. We are focused on spreading the word and finding a cure for this terrible disease that affects too many.
With Love,
Iris
Organizer
Iris Greenfield
Organizer
Westport, CT