Hello world! My name is Shawnon and I am starting this page to help my sister Ally and her amazing daughter Braylynn. Yesterday my four year old niece was diagnosed with a tumor called Diffuse Intrinsic Pontine Gliomas. It is a cancerous tumor located in the middle of her brain and is attached to her brain stem. We were told it is inoperable, chemotherapy does not affect it and the only thing they can do is use radiation to slow the growth process. This may only help for about two months and then it will stop working as well. She has less than a 10% survival rate. We were told she may live for about a year. As you can imagine this is extremely heart-breaking to our family as our father is also dealing with ALS and is passing away as well. My sister is not ready to give her daughter up and they are both fighters.
Braylynn is a happy, smart, enjoyable four year old who will be five on Sunday. She hasn't had the chance to live her life yet and we are asking for your help to in order to give her the best possible chance. There is a surgeon in North Carolina that has successfully operated on this kind of tumor before and has had great outcomes. We are raising funds to get Braylynn, my sister, her husband, and her seven year old daughter to this doctor and to have this surgery. They need help with travelling expenses, shelter, every day needs such as food, and most importantly, the surgery. Every dollar helps no matter how big or small. The worst thought for a parent is burying their child. Please help us in our fight to keep that from happening.
Thank you for listening and thank you for helping if you can.
A scared and caring Aunt Shawnon
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- Mark McKinnon
- Heather Louviere
- Nicole Pellegrino-Muller
- Luciano Scarsi
- Christian Kolowratnik
Organizer and beneficiary
Gulf Breeze, FL