Brayden's fight against GM-1

On Tuesday Feb 20th we took Brayden into the walk in clinic thinking that he just had a cold and within 30 minutes we were sent by ambulance to the emergency room because he was in respiratory distress & his oxygen was at 74%. We were admitted to the hospital were they had him on oxygen and monitoring his breathing. He started to show some signs of improvement but the congestion sounded like it was starting to move into his chest so the doctor called for a chest xray, when we received the results they told us that his heart looked enlarged and that they wanted to do an echo just to make sure everything was ok. I will never forget the look on the doctors face when they came in and told us that the left part of Brayden's heart was only functioning at 30% and that Benefis did not have the resources needed to treat him and that we needed to go to Seattle childrens hospital sooner rather than later. They told us that the mercy flight was going to take us and to pack a bag because within the next hour we needed to leave. Myself and Brayden were transported to seattle and admitted to the cardiac ICU. Zach, Camden & my mom Lori flew out Saturday morning. I have never felt so overwhelmed in my entire life, a few days before we were just treating him for a virus and now i was sitting down talking to a heart failure doctor! Thank god he has turned a corner and is recovering very well & the outcome will be just a few medications a couple times a day. Throughout this whole process i have not been able to work and Zach worked minimal hours while Brayden was in the hospital in Great Falls, & has now been out of work himself since flying in on Saturday.  We have had to rent a vehicle and book a hotel. We were under the understanding that our insurance would help us cover the cost of travel and food, we found out yesterday they they do not cover travel expenses in emergency situations (i know crazy right, makes no sense to us!) The cost of everything has been piling up and it will take us a while to catch up once we get home. We have appreciated all your thoughts and prayers throughout this whole process & if you are able to help we would be so grateful to you helping us get back on our feet.

Donations

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  • Anonymous 
    • $100 
    • 27 mos
  • Esther Wheeler 
    • $25 
    • 28 mos
  • Eny Weber Morasko  
    • $100 
    • 30 mos
  • Lindsey Gustafson 
    • $20 
    • 31 mos
  • Denise Britt 
    • $50 
    • 33 mos
See all

Organizer

Alecia Hammer Gloege 
Organizer
Great Falls, MT
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