Brayden is getting a gene therapy

Brayden, our youngest, was born with Severe  Combined Immune deficiency .  Which means he has no immune system. He had a bone marrow transplant when he was 8 months old.  His transplant is sadly  starting to wear off.  He has been seeing doctors at the NIH in a clinical trial for gene therapy. This treatment may not only provide Brayden with a better standard of living, but may be used for others with his condition as well.

Starting January 22nd, Brayden and mommy will be spending 4-8 weeks in the NIH hospital in Bethesda while he undergoes treatment.  On the weekends, daddy will come so mommy can spend time with their other children. During this time, mommy will not be able to work and therefore will not be getting a check during this time. This could carry over for a couple of weeks after coming home depending on how Brayden is doing. With daddy coming up every weekend, he will not be able to work 2 part time jobs (on top of his full time job) as much and lose a good amount of income from them. We will do anything for our children and this is an extreme sacrifice, but we are not so arrogant to realize we need help. We humbly ask if you are able to contribute anything, we would be grateful. While the treatment will not cost us, having to constantly purchase food in the NIH (which is REALLY expensive) as well as loss of income and traveling over 2 hours on way, will have a significant financial impact on us that we are unable to absorb ourselves.

We thank you in advance for ANY contribution you feel you can spare so we can allow our child to undergo this treatment to hopefully change his life and the lives of others with the results it produces.