** March update***

I wanted to share an update on my health and current situation.

Currently working with neurologist to manage medication and side effects. With MRI’s and follow up still planned for the next 12-18 months.

As of march housing remains pending. I have been informed that approval is still under review, and there are currently no new timeframes for when permanent housing may become available. My disability claims have been fully submitted, and all requested medical and supporting documentation has been provided to the Social Security Administration. Additionally, congressional members have been contacted to assist with the process, but no updates have been provided so far.

The raised funds would help cover: 

 -Medical treatments and hospital expenses 

 -Travel and lodging for specialized care 

 -Rehabilitation and supportive therapies 

-Household bills and daily living expenses during recovery 

Every donation regardless of the size makes a meaningful difference. If you are unable to give, sharing this page and keeping your thoughts and prayers on positive recovery means the world.

** January update*****

I wanted to share an update on my health and current situation. I have officially completed radiation treatment. The course consisted of 30 treatments spread over six weeks, and while I’m grateful to have reached the end of this phase, the side effects have been intense. Hair loss and significant lethargy have been the most challenging symptoms. My doctors have advised that these effects should be temporary and that with time, rest, and recovery, I should begin to see improvement over the coming months. As part of my ongoing care, I have met with my medical team to establish a long-term monitoring plan. The tumor resection was successful, and biopsy results confirmed a WHO grade 2 atypical tumor. Since there is a risk of recurrence, I will continue to be monitored closely with regular MRIs over the next 1–2 years. I will also remain on anti-seizure medication for at least the next year.  

Housing remains pending at this time. I have been informed that approval is still under review, and there are currently no new timeframes for when permanent housing may become available. My disability claims have been fully submitted, and all requested medical and supporting documentation has been provided to the Social Security Administration. Additionally, congressional members have been contacted to assist with the process, but no updates have been provided so far. 

I want to sincerely thank everyone for the kindness, encouragement, and well wishes I’ve received throughout this journey. Your support has meant more than I can put into words. As I continue to recover and wait for updates on housing and disability, any donations are deeply appreciated and will help support me during this transition period. 

I remain hopeful, focusing on healing one day at a time, and finding comfort in each moment. Thank you again for standing by me during this challenging chapter.

***December Update****

Halfway through radiation treatment. They spread the 30 total treatments over 6 weeks. The final treatment will be the week of December 25th. The hair loss and lethargy have been the largest side effects so far. I’ve been told by the doctor they should be temporary. Hopefully within a few months after the treatment I should see an improvement. 

*** November update ****

I have been to see the radiologist who has created a plan for my ongoing treatment. I am going to find out by late October or early November. The treatment will be Monday- Friday for about 7 or 8 weeks.

I am currently waiting on the custom mask that will hold my head still during the radiation to be completed.

I am still waiting on housing who has advised me that I’m still pending approval. There have been no programs or apartments available for someone with a cancer and seizure diagnosis according to them.

I am also waiting for disability to approve my application. I provided the information that I had the surgery and that I have seizures but I have not been given an approval as of October 20, 2025.

I have been to the neurologist who advised I’ll need to continue monitoring by MRI for the next 1-2 years. 

They advised that the tumor resection was successful and that the biopsy results came back as a WHO grade 2 atypical tumor. 

The chances of it reforming is why they will be monitoring by MRI. 

I was advised I will need to stay on the anti-seizure medication for the next year as well. 

The update about driving and working is still being revised as the side effects of the medication are making daily tasks more challenging. 

I appreciate the support that has been given and hope that everyone is finding the joy and love in their lives. Find comfort in each day and remember that the world you live in can be filled with potential.

***Update***

Surgery recently took place on 2/17/2025 and 2/18/2025. 

***Still healing as I am recovering from incision and medications for seizures. 

Will update about work and driving abilities but still on heavy rest and medication. ***

Any additional resources or information to assist with the transition into this new stage in my life would be greatly appreciated.

For the first time I am openly asking for help. To have the world around me show up in a time where I truly need the support of those who are capable.

I don’t just need assistance at this point I am looking for confirmation that help is coming. I have had some amazing support and people around me and I’m thankful for every single day I have been given. I hope my story and my recovery are able to be an inspiration to others.

Here is the context I have so far.

I will always be open to questions, posting updates and sharing as much transparency as possible moving forward.

Since a young age have felt very aware of my need to remain quiet and small in the world.

Complaining or requests for help were a sign of weakness. Why not just push and “hustle” like everyone else?

For the past almost 40 years I’ve been alive I’ve worked through pain, anxiety and general life traumas (going to school across the street from 9/11 the day it happened, car accidents where people ran red lights and totaled my vehicle.).

I have been told to power through and just keep moving forward has been my best habit each time.

Accept whatever you can get because people don’t usually get all they need.

With that lite context I will now explain where the walls have come down.

December 27,2024

I had a seizure that I was not aware of until I was told it happened.

I do not to this date have any record of it in my memory which is apparently common.

After being told by my partner who unfortunately was awake and experiencing the entire situation in real time I was admitted to the hospital for the seizure.

Once in the hospital I was given an MRI where

the neurological team fond a 5x4x4 cm tumor growing inside my left frontal lobe with current blood flow.

The pressure has been extensive and is around 15-20 years old according to the bruised aera and size on the scan.

The mass is not cosmetic or something that can be left untreated. It must have action taken now for my health. .

I am still coping with the fact that driving, working, taking care of myself physically is something I’m not able to fully handle at this point.

Even after surgery daily tasks might be more challenging. Which I have been told with time, monitoring and proper recovery I will be able to review.

I will have a different quality of life (plate in my skull, possible complications due to location of the tumor to spinal fluid and being inside my skull).

I am right now honestly the most uncomfortable and uncertain I have ever been in my life.

I am asking for assistance so that I can manage my care post surgery. As well as manage my health after surgery.

I’m staying positive about smooth actions and positive outreach.

I just know if I don’t at least ask and try then I’ll never get any movement.

I previously had health insurance that was denied by my employer. I explained my issues were physiological and told I “didn’t want to work”.

I was denied the appeal for my coverage to be reinstated upheld and told to just sue them in court. They made a statement that if I could have tried to have a lawyer and the situation moving forward addressed from there.

My situation now is based on the facts I’m being presented with.

I have a tumor the size of a small lime to a tennis ball pressing on my left frontal lobe that must come out and I need some confidence it will come out.

For everyone who has read this far thank you for being willing to at least hear out what I’ve been down.

honestly I have a YouTube channel , social media, etc

putting all this to video has been a massive anxiety for me.

even this has taken two weeks to write because I still feel it’s too much to share or ask for help.

thank everyone

thank anyone willing to help

for context the companies involved can be listed if more context is needed

currently just looking for help and to “fight” for what should have happened when I’m in recovery but I won’t hide anything,

just trying not to make this path to surgery take longer than it should