Brain cancer and not able to work right now

Hi everyone Nikki here 21 years of age, in January 2022 I was told I had a tumor in the back of my brain golf size got surgery to remove it on February 4th 2022 turns out it was cancer, February 14th got another brain surgery done because I caught a infection where the first surgery was done, on antibiotics for 21 days, I guess that messed up my speech and balance so I had speech and physical therapy. After a few weeks I was able to talk good again and walk with no walker, about to get off home health a nurse saw the back of my head where the cut from surgery
was, it was full of liquid like a blister. They sent me back to the hospital, turned out I needed another surgery (a drain) March 24th 2022 had that in for about a week March 30 2022 I got another surgery done because the fluid wasn’t going down so they placed a shunt in me, fast forward to July I had radiation 5 days a week for about two months( proton therapy) only 27 radiation machines like that in the USA. Moffit in Tampa,FL don’t even have the proper machines to deal with my kind of cancer it’s really rare (medulloblastoma). September now about to start cycle 3/6 chemo. I haven’t work since the end of January and I have lots of bills, parents and family help when they can, but have their own lives, plus I’m still not getting disability and I applied in January more than 7 months ago, so anything helps thanks. 

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Organizer

Nikki Marceus
Organizer
Sarasota, FL

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