Our brother Bobby died of Cancer 1 year ago. The foundation we (as siblings and parents) started in his name, the I'm Not Done Yet Foundation, helps adolescent and young adult (AYA) patients with serious, chronic, and long-term illnesses as they transition from pediatrics to adults.
During his early diagnoses, Bobby received wonderful care and expert treatment at Winthrop University Hospital in Mineola, NY. We are now partnering with NYU Winthrop Hospital Cancer Center for Kids
and the I’m Not Done Yet Foundation is funding the construction of a dedicated space within the Center specifically designed for AYA patients. Here, they will be able to socialize with their friends, study, play games, all in an age-appropriate and comfortable setting, while minimizing the distraction of the younger patients.
Partnering with NYU Winthrop Cancer Center for Kids
the I’m Not Done Yet Foundation is supporting the expansion of its Music Therapy program through the funding of new and more instruments. Music therapy adds a vital dimension to the care provided by the Center and was a critical element of Bobby’s treatment providing enduring happiness and normalcy.
Partnering with Duke Cancer Center
, the I’m Not Done Yet Foundation is funding the AYA advisory and counseling team connecting AYA patients with peer-to-peer resources and services to help them cope with their unique emotional and social needs.
Partnering with the Hospital for Special Surgery
, the I’m Not Done Yet Foundation is funding a comprehensive, longitudinal research study designed to identify and better understand the specific needs and challenges of children as they transition from pediatric to adolescent and young adult patients. Whether cancer patients, orthopedic patients, or patients dealing with a chronic condition, the goal is to develop better care, services and compassion through insight and understanding of this patient population.
Partnering with Case Comprehensive Cancer Center
(an integrated research and treatment consortium of Case Western Medical Center, The Cleveland Clinic and University Hospitals of Cleveland), the I’m Not Done Yet Foundation is funding the Innovation Initiative dedicated to the research and development of treatments for the sarcoma family of cancers that disproportionately affect AYA patients and have a very high mortality rate. Bobby ultimately died of a sarcoma because sadly, there are limited resources and very few new treatments available to this AYA disease category.
- Andrew, Emily, Jake, Pete, and Liz (Garden City, NY)