
Bob to get his new chair
Donation protected
Hello! My name is Jonell and I'm needing some help for my husband, Bob. Bob had a massive brain stem stroke in September of 2021. At that time, he could only move his eyes up for yes and down for no, but had absolutely no movement from the neck down. One doctor told me that that was the best we could ever hope for and that we should not consider life saving measures. He even went so far as to call me cruel for opting for those measures. The neurologist on staff had a different opinion. Thank God I listened to him. He told us that Bob was THERE. It's called Locked In Syndrome. Long definition short, the person is locked inside their own mind. They can hear, think, and comprehend, but cannot speak or respond other than with eye movements. Through the help of wonderful friends and family, we were able to get an ACC machine that allows Bob to “speak” by typing with his eyes. After 76 days in the hospital, he was sent to a nightmare of a facility which we were able to spring him from and get him home on Hospice care. We couldn't have asked for a better crew of people. They have taken such fantastic care of Bob – and our daughter and me. Now, a year and a half later, he has progressed to the point of graduation from Hospice care. That means that his prognosis is no longer that of imminent death. He can now move his neck and head to nod and shrug his shoulder, and he can move his fingers, wrist, and arm on his left side and smile. With this graduation, he will lose some significant services, supplies, and equipment. The biggest (and most important) thing that he will lose is his chair. He requires a special chair called a Broda Chair. It keeps his body in place as he has no trunk control. Apparently, insurance does not cover this type of chair at all, but the fabulous people at Hospice had rented one for him themselves while he was under their care that now had to be returned. They knew and understood how important it was for Bob, both physically and mentally, to be able to get out of bed or outside even if only for a few hours at a time – a luxury that the rest of us take for granted. We have two sons, three very active grandchildren, and a 14-year-old daughter. It is very important for his continued rehabilitation that he not be restricted to his bed 24 hours a day and be allowed to continue important social interactions with family and friends. This chair is the only way he can be in the center of these activities and get outside for fresh air on occasion. We would be so grateful if any of you reading this could help in any way. Donations, sharing this to get the word out, prayers for continued progress, anything. Thank you!