Hi, my name is Myah, and my mummy is called Lauren.

You may have seen us before, as I’ve needed a lot of help throughout my life due to being very poorly. I was born with a very rare condition called micropthalmia, which means I was born without one eye.

Since I was little, I have undergone 24 major surgeries. These have included skin and fat grafts, removal of my micropthalmic eye, and treatment for ongoing granulomas and infections. It hasn’t been easy, but my mummy has never stopped fighting for me. She has spent years researching and travelling the world to find the best specialists to give me the best chance at a normal life.

Growing up was incredibly hard. I was bullied for years — I was called names, spat at, and even physically hurt. It destroyed my confidence. I stopped going to school, didn’t want to leave the house, and became very isolated. I gave up my hobbies and struggled with my mental health. My mummy tried everything to help me — counselling, different treatments, and support — but nothing seemed to work.

Until everything changed.

My mummy found an ocularist in America who creates incredibly realistic bionic eyes. These eyes look so real that the pupils even appear to react to light. Before this, the eyes I had didn’t fit properly, caused infections, didn’t match my colour, and sometimes made the bullying even worse.

My mummy even went on TV to ask for help so I could travel for this treatment.

Since receiving my bionic eye, my life has completely changed. I no longer get bullied because no one even realises I have a disability. The eye fits properly, looks natural, and I haven’t had any infections since. For the first time, I feel confident. I feel like I can finally live my life.

Now, I even feel proud to show my eye — it’s my superpower.

However, because I am still growing, I need a new eye made regularly. Ideally, this would be every 6 months, but travelling to America that often isn’t realistic for us. So we have agreed to go once a year.

This is why we are fundraising £50,000 — to cover the cost of a new bionic eye every year until I turn 18.

My mummy will place the funds into a trust, with strict terms to withdraw £5,000 each year for a new eye, made every August before I move up a school year.

I have also recently been diagnosed with ADHD and tics, which can make managing my emotions difficult. When my eye doesn’t fit properly, it makes everything even harder. This year alone, we tried two NHS eyes that unfortunately failed and couldn’t be used.

I can’t imagine going back to how life was before. This treatment has given me confidence, happiness, and a future I never thought I’d have.

Thank you so much for taking the time to read my story. Thank you to everyone who has supported us so far — it truly means everything to me and my mummy. We are so grateful.

We will continue to share updates each year as I receive my new eyes and continue my journey.

Thank you again for supporting my future.

Love,

Myah

MYAHS MIRACLES charity

We are now raising funds to set up a charity dedicated to supporting families facing similar rare conditions to Myah’s.

I know first-hand how it feels to be completely alone, in the dark, with no clear guidance on what to do next. When your child is diagnosed with something so rare, there are very limited support groups, very little accessible information, and often no one nearby who truly understands.

As a single mum, I have fought tirelessly to get Myah the best treatment possible. I’ve explored every avenue — surgeries, specialists, fundraising, support networks — anything that could give her a better quality of life.

To this day, Myah has never met another child with the same condition in person. Only online. Yet parents from all over the world reach out to me asking for advice, support, and guidance on what comes next.

That’s why I want to change things.

This charity will create a safe, supportive space where families can:

• Connect with others who truly understand

• Share experiences and advice

• Ask questions without fear

• Access trusted information and contacts

• Simply vent, talk, and feel heard

We also aim to raise funds to support vulnerable children and families who need help accessing treatment, care, and emotional support.

Everything we are building has only been made possible because of the incredible support we’ve received from the public over the past 10 years. Without that, we would never have come this far — to a place where Myah can finally live a life she’s happy in.

Now, it’s our turn to give back.

We want every family facing a similar journey to know this:

You are not alone.