Hey guys. First off, thanks for clicking on my go fund me! Secondly; welcome and finally, Buckle in, I’ve tried to be as concise as possible but it’s gonna be bit of a long ride.

So, for those of you who don’t know, my names Bie. I’m 27, female (she/her) I live in Kent, where I trained at university as an artist.

Since May last year, I’ve been having a hard time. My pre existing conditions worsened around May time when I experienced a huge loss. Following this, I had a series of medical complications which eventually led to be hospitalised.

For those of you who don’t know, I have a bunch of chronic conditions I was born with, but didn’t find out about until I was 18, these include Ehlers Danlos, closed spina Bfidia and an Arnold chairi malformation. Additionally, I am autistic, ADHD and suffer with severe OCD. These all cause a huge range of symptoms, some overlapping and almost all of them limiting my quality of life. Symptoms I’ve been struggling with include migraines, vomiting, slow gut motility, partial sight, chronic widespread joint pain, inflammation, fragile skin, dislocating joints, dental problems, heart issues, CSF symptoms… the list goes on and on. Essentially, it’s impacting my quality of life to a massive extent. I’ve not been able to work for a few years now; but I used to be a cafe manager, and my day to day world has gotten so much smaller over the past year as my conditions have gotten worse.

I’m writing this today, because a week ago I had surgery to try and help some of my ongoing health conditions. I waited for this surgery for years, fought month in and month out to advocate for myself and my needs. Bit of background context - Prior to surgery I’d been diagnosed with two ovarian cysts, polyps in my womb, endometriosis and adhelyosis (my bowel and womb were fused and so were my ovaries and uterus). This surgery was meant to help my ongoing chronic pain, particularly in my left side - hip, knee, pelvic area, and consequential very limited mobility and so forth.

Unfortunately, my surgery was unsuccessful . Although I did end up having the above removed; what was found did not explain my pain, the fact I can’t walk properly, or any of my other symptoms. I thought I’d managed my expectations as going in I knew it was only a 50% success rate, but I am gutted.

I have made the decision to share my health struggles, not only to raise awareness but to hopefully get me some help, because guys- I’m struggling. This is me saying I need some support, now more than ever.

I have a manual wheelchair and use a walking stick, but it has been suggested that the time has come for me to start using a power assist chair, and I am also going to have a private appointment with a specialist. 

However, these things cost money, and as someone who can’t work, I don’t have a lot of that going spare. This is essentially me putting my case forward, to try and receive some help for the above things. My goal is to raise enough money for the relevant specialist appointment and a suitable chair for myself.

Thank you for taking the time to read this and even if you can’t donate please do share, like or interact with this post or my other accounts to raise awareness. If you want to follow my journey you can join me over at @chronicallybie on instagram thank you for your support!