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https://www.facebook.com/1961BharatbhaiBhikhabhaiPatel2019/?modal=admin_todo_tour My dad's name is Bharatbhai Bhikhabhai Patel. He was born in Gujarat, India, on December 9th, 1961. In his 20's & 30's he had already achieved so much. He was a mayor, a board of director, a leader, a trustee, someone who always believed in the betterment of others. He was the first person in Gujarat, India to produce Vermicompost in his backyard and was honored with an award by the current prime minister Shree Narendra Modi. With great power comes great responsibility, and he took that responsibility were rightfully. Leaving the power, frame, and comfort behind, my parents immigrated from India to Sacramento, CA in May 2000 with my siblings and I.
We have been staying in California for past 19 years. In August 2016, My dad initially developed an elbow pain and weakness, in his right arm at which time his primary care physician treated him with pain relievers and physical therapy.
The symptoms continued, therefore, my Dad met with a neurologist, Dr. Apte in Gujarat, India, in November 2016 while we were there for my sister's wedding. Dr. Apte had my Dad undergo multiple tests, ultimately revealing the diagnosis of ALS. We were initially in complete denial. How could a healthy, 55 year old vegetarian, non-smoker, non-drinker, who practiced yoga and went on walks daily develop such a debilitating disease? We obtained a second opinion with another neurologist, Dr. Singhal, in Mumbai, India. Dr. Singhal has confirmed our worst fears.
We were devastated. The ALS was going to become our family's new reality. Though there was no known cure, there was nothing we could do but stay positive and explore any and all measures that would help limit our Dad's suffering.
Upon our return to California in January 2017, we transferred his care to an internal medicine Dr. Nishimura and an ALS specialist, Dr. Sampson, at Stanford Health Care. At this time, there was only one medication available for ALS "Riluzole." In May 2017, the FDA approved "Radicava", the first new treatment for ALS, in 22 years. My Dad was lucky to be among the first to receive this intravenous infusion through a port in his chest. My Mom administered Radicava per the doctor's protocol. Though it wasn't easy for her to be around needles, her devotion and love towards my Dad gave her the strength to overcome her fears.
We were fortunate that Radicava slowed the progression of ALS, allowing all of us to spend more time with Dad. However, it also prolonged his suffering from this disease. Over the next couple of years, the ALS continued to progress. In February 2019, Dad ultimately required a feeding tube to maintain his nutrition. He also needed help breathing and initially required a BiPAP machine, followed by a Trilogy 100 ventilator at night.
Despite Dad's will power to beat ALS and our entire family's devotion to caring for him and the best Dr's by him, My dad lost his battle with ALS on Memorial Day; May 27, 2019. He lived with ALS for 2 years and 9 months and an average life expectancy for ALS patients is 2-5 years; He was and will always be our HERO; a fighter till the end.
My Dad was a kind, generous, happy-go-lucky guy. He loved his family, friends and everyone around him. His interests include agriculture, farming, learning new things and enjoying life with a 440 vault smile. He had a fighter's spirit with a never give up attitude towards life. He believed in the power of positivity and always had good things to say about everyone. His humble nature and his down to earth personality will be missed dearly. ALS weakened his body, but his mind and heart remained pure and sharp until the end.
Our goal with this fundraiser is to create awareness and to raise funds for more research and development of treatments and cures for ALS. ALS is a disease that has no racial, ethnic, or socioeconomic predilection. Fifteen people around the world are diagnosed with this terminal condition each day. In India, ALS symptoms are often mistaken as "Lakhva/Paralysis " or " vah". It's the worst feeling to know that there is no CURE and there is nothing you can do to help your loved one. Therefore, any contributions you are able to make will help towards finding a cure so another family doesn't have to feel helpless like we did.
Dad, you are gone but you lived your life for the betterment of others and now we will carry on your legacy. Please help us spread awareness for research so that CURE can be found soon.
Special Thanks to all of the wonderful doctors that cared for my Dad as well as my family and friends, Gujarati community, Leva Patidar Samaj who have supported us over the past three years. We feel blessed with positivity and warmth.
❤ LOVE you Dad ❤
Rest In Paradise: BharatBhai BhikhaBhai Patel
(1961- 2019)
Cause of Death: ALS -> Due to NO Available CURE :'(
#BharatBhaiBhikhaBhaiPatel #GoFundMe #CureForALS #ALSResearch #ALSIceBucketChallenge #SpreadAwarness
#LouGehrigsDisease #ALS #ALSDisease #AmyotrophicLateralSclerosis #MND #NeuroDegenerativeDisease #MotorNeuronDisease #TheLegacyContinues #MemorialDayHERO #RememberingHeros #LoveLivesOn #LightOfOurLife #GaamPardiKhojINDIA #SacramentoCalifornia #CitrusHeightsCalifornia #MayYourSoulRestInParadise #PositiveVibesOnly #GreatHumanBeing #AlwaysSmiling #AlwaysInspiring #IGetItFromMyDaddy #BestestDadEver #BestHusband #BestSon #BestBrother #GreatFriend #AmazingLeader #MyForeverHero #MyFlighter #Support #Fight4Cause #Radicava #Riluzole #FindCure4ALS #PayingItForward #HelpTheNextPerson #TheALSAssociation #Lou GehrigNewYorkYankees #DRStephenHawking
https://www.facebook.com/1961BharatbhaiBhikhabhaiPatel2019/?modal=admin_todo_tour
We have been staying in California for past 19 years. In August 2016, My dad initially developed an elbow pain and weakness, in his right arm at which time his primary care physician treated him with pain relievers and physical therapy.
The symptoms continued, therefore, my Dad met with a neurologist, Dr. Apte in Gujarat, India, in November 2016 while we were there for my sister's wedding. Dr. Apte had my Dad undergo multiple tests, ultimately revealing the diagnosis of ALS. We were initially in complete denial. How could a healthy, 55 year old vegetarian, non-smoker, non-drinker, who practiced yoga and went on walks daily develop such a debilitating disease? We obtained a second opinion with another neurologist, Dr. Singhal, in Mumbai, India. Dr. Singhal has confirmed our worst fears.
We were devastated. The ALS was going to become our family's new reality. Though there was no known cure, there was nothing we could do but stay positive and explore any and all measures that would help limit our Dad's suffering.
Upon our return to California in January 2017, we transferred his care to an internal medicine Dr. Nishimura and an ALS specialist, Dr. Sampson, at Stanford Health Care. At this time, there was only one medication available for ALS "Riluzole." In May 2017, the FDA approved "Radicava", the first new treatment for ALS, in 22 years. My Dad was lucky to be among the first to receive this intravenous infusion through a port in his chest. My Mom administered Radicava per the doctor's protocol. Though it wasn't easy for her to be around needles, her devotion and love towards my Dad gave her the strength to overcome her fears.
We were fortunate that Radicava slowed the progression of ALS, allowing all of us to spend more time with Dad. However, it also prolonged his suffering from this disease. Over the next couple of years, the ALS continued to progress. In February 2019, Dad ultimately required a feeding tube to maintain his nutrition. He also needed help breathing and initially required a BiPAP machine, followed by a Trilogy 100 ventilator at night.
Despite Dad's will power to beat ALS and our entire family's devotion to caring for him and the best Dr's by him, My dad lost his battle with ALS on Memorial Day; May 27, 2019. He lived with ALS for 2 years and 9 months and an average life expectancy for ALS patients is 2-5 years; He was and will always be our HERO; a fighter till the end.
My Dad was a kind, generous, happy-go-lucky guy. He loved his family, friends and everyone around him. His interests include agriculture, farming, learning new things and enjoying life with a 440 vault smile. He had a fighter's spirit with a never give up attitude towards life. He believed in the power of positivity and always had good things to say about everyone. His humble nature and his down to earth personality will be missed dearly. ALS weakened his body, but his mind and heart remained pure and sharp until the end.
Our goal with this fundraiser is to create awareness and to raise funds for more research and development of treatments and cures for ALS. ALS is a disease that has no racial, ethnic, or socioeconomic predilection. Fifteen people around the world are diagnosed with this terminal condition each day. In India, ALS symptoms are often mistaken as "Lakhva/Paralysis " or " vah". It's the worst feeling to know that there is no CURE and there is nothing you can do to help your loved one. Therefore, any contributions you are able to make will help towards finding a cure so another family doesn't have to feel helpless like we did.
Dad, you are gone but you lived your life for the betterment of others and now we will carry on your legacy. Please help us spread awareness for research so that CURE can be found soon.
Special Thanks to all of the wonderful doctors that cared for my Dad as well as my family and friends, Gujarati community, Leva Patidar Samaj who have supported us over the past three years. We feel blessed with positivity and warmth.
❤ LOVE you Dad ❤
Rest In Paradise: BharatBhai BhikhaBhai Patel
(1961- 2019)
Cause of Death: ALS -> Due to NO Available CURE :'(
#BharatBhaiBhikhaBhaiPatel #GoFundMe #CureForALS #ALSResearch #ALSIceBucketChallenge #SpreadAwarness
#LouGehrigsDisease #ALS #ALSDisease #AmyotrophicLateralSclerosis #MND #NeuroDegenerativeDisease #MotorNeuronDisease #TheLegacyContinues #MemorialDayHERO #RememberingHeros #LoveLivesOn #LightOfOurLife #GaamPardiKhojINDIA #SacramentoCalifornia #CitrusHeightsCalifornia #MayYourSoulRestInParadise #PositiveVibesOnly #GreatHumanBeing #AlwaysSmiling #AlwaysInspiring #IGetItFromMyDaddy #BestestDadEver #BestHusband #BestSon #BestBrother #GreatFriend #AmazingLeader #MyForeverHero #MyFlighter #Support #Fight4Cause #Radicava #Riluzole #FindCure4ALS #PayingItForward #HelpTheNextPerson #TheALSAssociation #Lou GehrigNewYorkYankees #DRStephenHawking
https://www.facebook.com/1961BharatbhaiBhikhabhaiPatel2019/?modal=admin_todo_tour
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