He is a patient of the Jackson Memorial Hospital, he is beign treated for Batten Disease which is a deadly and hereditary disorder of the nervous system that begins in childhood. Also known as Spielmeyer-Vogt-Sjogren-Batten disease, it is the most common form of a group of disorders called neuronal ceroidolipofuscinosis. Over time, affected children suffer from mental disabilities, more severe seizures and progressive loss of sight and motor skills. Eventually, children with Batten's disease become blind, bedridden and even demented. Batten disease is often fatal in the late years of his youth. We need your help so my son can keep taking medications for his seizures and save some funds for when God decides, and be able to take his body back to my country Ecuador.
I thank God for his great love and mercy for all those who extend their hands to help with their donations.
- Silvia Cuellar
- Lani Braun
- Carlos Padilla
- Galo Serrano
- noryann Sanchez
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