Like a fisherman fighting in a perfect storm, though it is like going through hell, the tiniest light from a lighthouse will give us courage to hang on longer. Be our lighthouse.
Mary is my mum.
I am raising funds for my mum who has Motor Neurone Disease, to get a Tobii eye gaze device
so that she can communicate her thoughts to my dad and I and others that care for her, and a synchronous lung ventilator
so she can breath more freely and which could possibly extend her life. I hope this campaign can raise sufficient funds in the next month for these assistive and life support devices.
It has been seven years since the diagnosis.
According to Motor Neurone Disease Association, apart from Professor Stephen Hawking, 50 per cent of the MND sufferers die within 14 months of diagnosis and the remainder within five years.
Day after day, year after year, mum got over the cursed five year limit, and is now approaching the eighth year in the storm of MND. In the last seven years, the controlable muscle that mum has is now becoming less and less usable. All she can do now is blink her eyes, or slowly shake her head, to respond to others which shows she still has a conscious mind.
With dad being the sole 24/7 carer, dad is like an overworked machine, an overloaded machine that could crash anytime, and never come back up running again.
Just like the lights from the lighthouse which reach the ships far far away, every part of your donation will make a difference on mum's health condition. To fight this perfect storm, we need courage, we need support, and we need your help. Plese support our fundraising project, and be our lighthouse.