No parents should ever have to attend their child's funeral. Unfortuantley that is the predictable future for Brian and Vanessa Benic. In October their 1 yr. old daughter, Aria Rose, was diagnosed with terminal Leigh's Disease.
After working with Brian for over 5 years, I know he wont settle for what's predictable. He and his family are committed to a miracle. To what is possible.
The road ahead involves clinical trials, time off work, dozens of specialists, traveling across the state and country.
The emotional strain of this situation is compounded by the financial reality. As his friend and colleague I want his family to be worry free from the financial hardship they may face, regardless of the outcome. With a little hope this will allow Brian, Vanessa, and their family to focus on what matters - being with their daugther and working tirelessly towards her recovery.
Whatever you can donate is greatly appreciated.
for more on Leigh's Disease - http://en.wikipedia.org/wiki/Leigh%27s_disease
After working with Brian for over 5 years, I know he wont settle for what's predictable. He and his family are committed to a miracle. To what is possible.
The road ahead involves clinical trials, time off work, dozens of specialists, traveling across the state and country.
The emotional strain of this situation is compounded by the financial reality. As his friend and colleague I want his family to be worry free from the financial hardship they may face, regardless of the outcome. With a little hope this will allow Brian, Vanessa, and their family to focus on what matters - being with their daugther and working tirelessly towards her recovery.
Whatever you can donate is greatly appreciated.
for more on Leigh's Disease - http://en.wikipedia.org/wiki/Leigh%27s_disease
Organisator
Edward Kennedy
Organisator
Lake Forest, CA