10/10 - Levi's surgery yesterday was 9.5 hours and went exactly as the surgeon was hoping for with no surprises. The during surgery MRI scans show two tiny spots that we think are bleeding spots from tumor removal so he was confident he got either all or 99.9% of the tumor. Everyone's positive energy, prayers and vibes worked and Levi's life saving surgery went very well! Now we are in the recovery phase which is a crazy long journey with a lot of scary steps along the way. As you can imagine Levi has spent his first day post-surgery sleeping a lot and very confused. He also has pretty severe swelling. The drain remains in place while we wait to see if his body returns to drain fluid like normal or if he will need an additional surgery to install a shunt to redirect the fluid. We also are awaiting the final answer if the tumor was malignant or not. Keep the prayers coming for our brave little warrior!!
10/8 - Thank you all so much for the donations, love, and support. Today we met with the neurosurgeon who is the head of the department and the one performing the surgery and acting as the lead on the team. Levi goes into the OR Tuesday at 6:30am and due to the size of the fluid filled cyst we don't know how long surgery will be, it could be 4 hours or 9 hours. The cyst is the fluid filled sac, the actual tumor is in two places and quite small although that doesn't mean it's simple. We won't go into the list of risks and complications as there were many. The goal of the surgery is to 1. Remove the fluid from the cyst 2. Remove the tumor and 3. Address any issues (that arise from the sudden drop in pressure in his brain, that has been there for months). Our surgeon said he would be shocked if the tumor sample came back cancerous but he can't rule it out (it takes a week for results). There are chances of further or future surgeries depending on what happens as well. Please keep Levi in your thoughts and prayers all Tuesday and this little boy has been so strong through this and needs our help to remain strong during the days and weeks ahead.
10/7 - The new MRI shows that the tumor is very large, which we knew. However, it is fluid filled, which is the easiest to remove! The only negative is that they will not know if the fluid in the tumor is cancerous until they get it out, so even though the previous fluid was negative for cancer, we're still not totally out of the woods yet. The removal is scheduled for Tuesday.
10/6 - Huge thank you to everybody for your love and support. Levi had his first emergency brain surgery last night to place an external drain to release some fluid and relieve some of the pressure. The drain is temporary and requires he stay calm and quiet (not easy for a 4yr old!) and it drains fluid safely. Next steps are MRIs that will help the team see the big tumor the best and create a plan for removal probably on Tuesday.
Levi Shaw is a bright and thoughtful 4 year old whose vibrant personality brings out the best in us (while usually making us laugh quite a bit). He is a wonderful big brother, and beloved son to Danielle and Adam Shaw.
Levi was unexpectedly admitted to the hospital for swelling behind his eyes and around his nerves. After the CT scan came back as concerning, an MRI confirmed an 8 cm mass in his brain. Due to the seriousness of the mass, he was flown to Boston by helicopter for surgery and is in critical condition.
We are asking for help for Danielle and Adam Shaw to meet their insurance deductible, and for help with Levi's continued medical care. Any donation amount helps, and is sincerely appreciated. Please keep Levi , Danielle, and Adam in your thoughts and prayers as they undergo this trying experience.
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