Donation protected
Hello everyone,
Let me introduce you to the beautiful Bella. Bella is a 6 year old little girl who has complex health needs, Bella is classified as non mobile and non verbal. Despite Bella’s health conditions and daily complexities , she’s a courageous, beautiful, happy little girl whose smile lights up any room she’s in.
Bella’s main diagnosis is a gene variation called SCN2A. This was simply a spelling mistake in her DNA. However this gene is vital for her brain to send messages to all parts of her body. The SCN2A gene is found on chromosome 2 in the band called 2q24.3. Most children severely affected by an mutation like Bella have:
-Epilepsy
-Developmental delay
-Movement disorder
-Hypotonia (floppiness of the body)
—Gastrointestinal complexities
The purpose to this fundraiser is to potentially help towards a few things that would help improve some of Bella’s Daily Life ! Bella’s family have a few things on their “wish list” that Bella needs in the next year and I would like to help them, with your help tick one or two items off the list:
-New Wheelchair - Bella currently has a very basic frame currently that doesn’t have a great suspension, which can often lead to triggering seizures when wheeling Bella on uneven or bumpy grounds. Sadly these are costly and we’ve had a quote come in at £5,255 !!
-Hydro therapy Swimming - and private physio. Not only does Bella enjoy this with her family it has a huge impact on her physical health.
-Wheelchair access to Garden - Bella loves being outdoors in the garden with her family, they currently only have a temporary ramp but in time this won’t be ideal as Bella gets bigger. So the family are looking for a ramp out to the garden for better access.
Let me introduce you to the beautiful Bella. Bella is a 6 year old little girl who has complex health needs, Bella is classified as non mobile and non verbal. Despite Bella’s health conditions and daily complexities , she’s a courageous, beautiful, happy little girl whose smile lights up any room she’s in.
Bella’s main diagnosis is a gene variation called SCN2A. This was simply a spelling mistake in her DNA. However this gene is vital for her brain to send messages to all parts of her body. The SCN2A gene is found on chromosome 2 in the band called 2q24.3. Most children severely affected by an mutation like Bella have:
-Epilepsy
-Developmental delay
-Movement disorder
-Hypotonia (floppiness of the body)
—Gastrointestinal complexities
The purpose to this fundraiser is to potentially help towards a few things that would help improve some of Bella’s Daily Life ! Bella’s family have a few things on their “wish list” that Bella needs in the next year and I would like to help them, with your help tick one or two items off the list:
-New Wheelchair - Bella currently has a very basic frame currently that doesn’t have a great suspension, which can often lead to triggering seizures when wheeling Bella on uneven or bumpy grounds. Sadly these are costly and we’ve had a quote come in at £5,255 !!
-Hydro therapy Swimming - and private physio. Not only does Bella enjoy this with her family it has a huge impact on her physical health.
-Wheelchair access to Garden - Bella loves being outdoors in the garden with her family, they currently only have a temporary ramp but in time this won’t be ideal as Bella gets bigger. So the family are looking for a ramp out to the garden for better access.
Co-organizers (2)
Jamie Weatherhead
Organizer
Kathleen Loosley
Co-organizer