Bekah and her family

Hi, my name is Scoti and my best friend and her family have recently received some devastating news about their two sweet babies. Asher (1) and Emberly (3) both have recently been diagnosed with a Mitochondrial disorder. A couple months ago, Asher got the flu and from there he started to lose his ability to hold up his head, roll over and sit up. He was admitted to the hospital early May where they did a brain scan. They found in his scan that the images were consistent with a Mitochondrial Disorder. With genetic testing they found he has a gene mutation of Leigh’s Syndrome called “Surf1”. They recently found out his life expectancy is 5 years old. After finding this out, their daughter Emberly started to have symptoms of shakiness and it was affecting her walking. She was taken to the childrens hospital as well where she was admitted and had an MRI and some other tests done. Her MRI shows consistent with a Mitochondrial Disorder as well. They are awaiting genetic testing for Emberly but Dr’s believe it is the same gene her brother Asher has as well. Due to Zach having to take off work for important doctor appointments and hospital trips I am making this to take any extra stress off of them. Anything is appreciated and if you cannot donate, feel free to share!