For those of you who don't know Beau, here is his story. He just turned a year old in May and is this busy, vicarious little brown eyed boy!!! On Thursday, July 6, 2017, Beau began to vomit, no big deal, right? All children get the stomach virus, right? Well by Saturday, July 8, 2017 he was still throwing up every thing he took in and Kayla decided it was time to take him to the ER for some fluids and something to help with the nausea. After zofran failed and an MRI of his head was normal, they were admitted for dehyration, observation and PO challenging. By day three in the hospital he had constipation that should on his addominal X-Ray. Day four he started having problems sitting, walking, standing and eventually even holding his own head up. Day 5 he had am MRI of his head and spine, this test was also clear! That's great, right, then why is he still vomiting? Day 6 he had an abdominal ultrasound and an EEG which both also showed everything was normal. Day 7 Beau was put to sleep where they did a lumbar puncture to get his spinal cord fluid and while sedated they place a feeding tube because its now day 7 and he is still vomiting everything he takes in! Day 8 the lumbar puncture results come back clear. Day 9, Beau is still constantly vomiting and the ataxia has gotten worse, they begin a high dosage of steriods. Day 13 he had a gastirc emptying study which showed he has gastopareisis (a condition that affects the stomach muscles and prevents proper emptying). On Day 14 Beau's feeding tube becomes clogged and stopped working so they began TPN (total parenteral nutrition) via IV. Day 16, Beau's mother, Kayla, leaves the hosptial for the first time, only because she has to return to work because she has exhausted all of her leave and she is the onbe who carries their health insurance. Day 17, Beau had a CT scan of his neck, chest, abdomin and pelvis to check for a neuroblastoma (a type of cancer that forms in nerve tissue). We all hold are breathes for what seemed like forever until 17 hours later the results come back and are NEGATIVE!!! Day 20 this poor little guy began a four day round of IVIG, this therapy can help people with weakened immune systems or other diseases fight off infections. Have I mentioned that the poor child is still vomiting multiple times a day? Since IVIG he has showed some improvement, day 21 he ate some bananna baby food and on day 22 he was able to stand (with a lot of assistance and for a short time) and play with his blocks. Even though he has shown a little improvement in that last couple days, we still have no confirmed diagnosis. There are still some pendings labs that we have not received the results from and a new round of doctors that started today want to run additional tests this week.
This little fellow has already been through so much in just a short period of time. His mom Kayla is a nurse and Doug, his dad, is a hard working business man. As you can imagine the medical cost for Beau are mounting up, and insurance only covers so much. Please consider helping this Beautiful young family and please keep Beau in your thoughts and prayers.
Thank you from the bottom of our hearts!
I will do my best to keep you all update on little Beau's recovery. ￼
- Gina O'Callaghan
- Lori Cameron
- Katherine Nemecek
- Corey Fisher
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