Beat upper motor neuron disease!

As I am starting the countdown to my next adventure, I was reminded today that I am not grateful enough for my health and physical abilities. When I wake up each morning I am able to get out of my bed and walk to my bathroom without even thinking about it. Can you imagine waking up one morning and feeling like your body is holding you prisoner in bed? Can you imagine losing all your abilities after being a healthy person? Having to think about taking one step without falling and/or crashing a bone? 

Today was Rare Disease Day 2017. If you are healthy and able please support those who are not! I watch my child struggle every morning to get out of his bed after being the kid who jumps out of bed and there is nothing I can do about it to help him.

Hereditary Spastic Paraplegia (HSP) is a group of rare inherited neurological disorders that are progressive and cause patients to be unable to walk, and more. In its uncomplicated form, HSP is characterized by progressive lower extremity weakness and spasticity. Complicated types affect other body parts and have more severe neurological damage. HSP is caused by degeneration (slow deterioration and death) of motor nerve cells in the brain and spinal cord that control voluntary movement (in some ways similar to ALS). As the degeneration continues, spasticity and weakness increase. There is no way to predict the rate of progression or the severity of symptoms. No treatments are currently available to prevent, stop, or reverse HSP.

Please help us raise some money for the Spastic Paraplegia Foundation (SPF) to support HSP research. 

The primary focus of SPF is to raise funds to support research to find the causes, treatments and cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis.

Ibrahim and other children with rare disease depend on you! Show them that there is love and hope out there!

Donations

  • Sharon Chupp 
    • $100 
    • 42 mos
  • Nancy Hoard 
    • $100 
    • 42 mos
  • Deborah Howell 
    • $50 
    • 42 mos
  • Janet Maltez 
    • $50 
    • 42 mos
  • Amy Shapiro 
    • $500 
    • 42 mos
See all

Organizer

Zeinab Ammous 
Organizer
Fort Wayne, IN
Spastic Paraplegia Foundation, Inc. 
Registered nonprofit
Donations are typically 100% tax deductible in the US.
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