Be a part of Baby Coen's Journey with Epidermolysis Bullosa

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30 donors
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$2,157 raised of 

Be a part of Baby Coen's Journey with Epidermolysis Bullosa

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Hi, I'm Coen Jin Hu Rafada, born May 31, 2025. I have Epidermolysis Bullosa (EB), or "Butterfly Skin." My skin is super fragile and blisters easily. There's no cure, so I'll need special wound care and pain management my whole life.

My mom and dad are amazing, driving an hour daily to see me in the NICU. My critical medical supplies, dressings, and hospital care are incredibly expensive.

Your donation will support my lifelong fight! It will directly cover my specialized skin dressings, pain medicine, hospital bills, and access to future treatments. I'm a little warrior, and every bit empowers this tiny butterfly.

Thank you!

Love,
Coen (and my family)

Co-organizers2

JJ Quizon
Organizer
Lehi, UT
Jem Q
Co-organizer
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