Baybe Blues Memorial Fund

My sister Baybeblue was the most beautiful amazing 15 yr old girl that spent her life battling a rare genetic disorder called cdkl5.  Blue got to finally stop fighting and passed away peacefully in her mother's arms with the sun shining on her beautiful face. Blue touched so many hearts in her 15 yrs here on earth. She was a source of hope, strength, and inspiration to every single person that knew her. Her beautiful smile and pure light made everyone around her want to be better people. Blues fight on earth may have ended but her legacy and strength will continue on forever thanks to her donation to cdkl5 research and the Harvard brain and tissue resource center. We are starting this fund to ease some of the burden My Mom Cyndy has right now so she can focus on grieving and healing. We want to plan a memorial that will show Blue how loved and appreciated she was by everyone she left behind here on earth. We will host a celebration that truly represents how much she impacted us all in her short life. It will be open invitation to everyone who loved her and became part of her story by following along and supporting our family the last 15 years. Let's all come together and show this little girl what she meant to us.

To Blue: We miss you so much. Everyone who ever met you was changed by your presence, smile and silly attitude. You brought glory into the lives of those who had none before you came. You left behind a legacy, one that will continue on through generations to come. You will be forever remembered as the ancestor who broke boundaries and challenged the world around her to be better. I can't wait to see you run to me when I come to meet you someday - Layla