Bath Half Marathon in aid of Cystic Fibrosis
Donation protected
Archie was born on the 13th of may 2021. Three weeks after Archie’s birth he was diagnosed with Cystic Fibrosis after having his heel prick test.
Cystic Fibrosis is an inherited disease that myself and Harry did not know we carried. The disease can cause problems in his lungs, pancreas and other vital organs.
This might come as a surprise to a lot of people, as Archie looks so well and healthy on the outside which is why it is so important for us to raise awareness about the disease.
There is some amazing medicine that will become available to Archie when he is 6 years old. Until then we have to keep Archie as heathy as possible through medicine at every meal time, as well as both morning and night. He also has to have a lot of Physio which can obviously be very difficult as he is only 8 month old.
Obviously this diagnosis has been very hard for us to come to terms with. This post isn’t for sympathy or for people to feel sorry for us at all, as we are so lucky to have the happiest little boy and we both couldn’t be any more proud of the person he is becoming! Throughout the year we will be raising money for the Cystic Fibrosis Trust and all I ask is that if people can, they help us to one day find a cure for our little man.
Our journey into the CF world started on the 3rd of June but our fight starts now
Organizer
Harry Brown
Organizer
England
Begin your fundraising journey