Babs & Zane & The Struggle of MCTD
Doação protegida
My name is Zane, I have been in a relationship with this amazing girl named Barbara for just shy of two years. She makes me so happy and is one of the most incredible, kind, intelligent people that I get to spend every day of my life with. Barbara has been sick, experiencing things from a three week flu to a seven month skin rash to constant aches, pains and swelling for over a year now. She was finally diagnosed in February of this year with an overlapping auto immune disease called mixed connective tissue disorder: abbreviated MCTD.
This disease effects mainly the skin, joints and muscles, causing inflammation and swelling in most of the body. She will have "flare ups" on a regular basis which could be anything from a rash to tightness in the chest, to common cold or flu to severe inflammation. This makes her everyday life tasks like getting dressed, opening doors and making meals extremely difficult and painful.
It can also start to effect the heart, lungs, liver and kidneys. The initial way to treat this condition is by taking a drug called Prednizone( an anti inflammatory with awful side effects) the most common doseage is 4-10 milligrams per day. Babs currently takes 20 milligrams and it isn't enough.
Within the last week we've had three emergency room visits seen three specialists regarding her condition and have racked up many medical expenses. We have had to see a Rhumatologist on a monthly basis and now with her condition worsening we are seeing him weekly, so the expenses are never ending. We were just now getting to the point where our doctor was putting the pieces together in order to know how aggressive the treatment should be When we discovered the disease has began to effect her heart and lungs. Now she is on chemotherapy to fight it. Needless to say we are scared for what our future holds.
Barbara has not been able to work a regular job for over three months and the medical bills are not getting any less expensive, not to mention regular every day life bills that we all struggle with our constantly hanging over our shoulders and beginning to fall behind. We have eliminated and decreased our regular monthly bills as much as we possibly can at the time and are still in no position to move forward financially with the next stages in our "little adventure". And my current job is not enough to sustain us or catch us up financially. And I am in no position to look elsewhere.
I decided to start a go fund me page to raise awareness for the condition called MCTD (because even some of the doctors we have talked to don't know what it is). I also wanted to reach out to people in hopes that we will get help paying for the next few months of our medical bills .
MCTD is a condition that prevents a person from being able to move without pain, and all I want for Babs is for her to be able to live life as happy and healthy as possible with a minimal pain. We've been told that she will probably have on average 3 1/2 good days out of every week for the rest of her life......after we finally get this thing under control. Please help us stay positive and help me make sure that my love can have as many good days in one week as possible for the rest of her life . Any donation will be more helpful than you can possibly imagine at this time.
And thank you for taking the time to read our story.
This disease effects mainly the skin, joints and muscles, causing inflammation and swelling in most of the body. She will have "flare ups" on a regular basis which could be anything from a rash to tightness in the chest, to common cold or flu to severe inflammation. This makes her everyday life tasks like getting dressed, opening doors and making meals extremely difficult and painful.
It can also start to effect the heart, lungs, liver and kidneys. The initial way to treat this condition is by taking a drug called Prednizone( an anti inflammatory with awful side effects) the most common doseage is 4-10 milligrams per day. Babs currently takes 20 milligrams and it isn't enough.
Within the last week we've had three emergency room visits seen three specialists regarding her condition and have racked up many medical expenses. We have had to see a Rhumatologist on a monthly basis and now with her condition worsening we are seeing him weekly, so the expenses are never ending. We were just now getting to the point where our doctor was putting the pieces together in order to know how aggressive the treatment should be When we discovered the disease has began to effect her heart and lungs. Now she is on chemotherapy to fight it. Needless to say we are scared for what our future holds.
Barbara has not been able to work a regular job for over three months and the medical bills are not getting any less expensive, not to mention regular every day life bills that we all struggle with our constantly hanging over our shoulders and beginning to fall behind. We have eliminated and decreased our regular monthly bills as much as we possibly can at the time and are still in no position to move forward financially with the next stages in our "little adventure". And my current job is not enough to sustain us or catch us up financially. And I am in no position to look elsewhere.
I decided to start a go fund me page to raise awareness for the condition called MCTD (because even some of the doctors we have talked to don't know what it is). I also wanted to reach out to people in hopes that we will get help paying for the next few months of our medical bills .
MCTD is a condition that prevents a person from being able to move without pain, and all I want for Babs is for her to be able to live life as happy and healthy as possible with a minimal pain. We've been told that she will probably have on average 3 1/2 good days out of every week for the rest of her life......after we finally get this thing under control. Please help us stay positive and help me make sure that my love can have as many good days in one week as possible for the rest of her life . Any donation will be more helpful than you can possibly imagine at this time.
And thank you for taking the time to read our story.
Organizador
Zane Berry
Organizador
Moosup, CT