Hi, I'm Baileys mum, Leah, and for anyone who knows us would be aware that our little girl has suffered with severe skin issues since birth.

What began as a simple rash was ignored, then misdiagnosed as eczema, and only recently properly identified as urticaria – chronic hives.

My poor baby has experienced what one doctor described as torture:

• red, raw skin that stings

• constantly moving rash

• swollen eyes

• raised welts

• relentless itching and peeling skin

• no relief

• and no answers

As a mother, it is heartbreaking to be told there is “nothing you can do” except hope your baby grows out of it. It isn’t good enough. Babies and children living with chronic hives deserve better answers, better treatment, and more awareness.

When Bailey has an outbreak, her skin becomes so raw that even gentle touch is painful. She is limited in what she can eat, wear, and be exposed to, almost anything can trigger it.

I was promised a hospital referral to see an allergist, but recently received a call saying Bailey was rejected because she isn’t anaphylactic and therefore “not a priority.” After months of waiting.

The only option now is a private allergist, which is expensive and somethings I cannot afford at the moment.

With Bailey’s first birthday in December, I want to dedicate this month to something meaningful.

My goal is to raise $2000, which will cover $1000 for Bailey’s allergist appointments and treatment as well as donating $1000 to AIFA (Allergy & Immunology Foundation of Australasia) to support research into conditions like hers.

To raise awareness and funds, I will be walking 100km this December, with my daughter and dog beside me, to shine a light on chronic hives in babies and young children.

If you’re unable to donate, even a simple share would mean the world to us.

Thank you for helping me fight for answers for Bailey, and for all the little ones living with this condition.