Baily is currently on a large home oxygen concentrator with a long hose he calls his “leash” that runs through the house, and has several sizes of heavy tanks that he takes with him to school, and on trips away from home that only last a few hours each. A small light weight portable oxygen concentrator such as the Inogen G4 that is only 3 lbs, would give Bailey freedom to be a kid, and not worry about dragging his “leash”, or lugging around large tanks, and carts, and how long he can be away from the fill station.
Bailey will never play competitive sports in school, and doctors expect his energy levels to gradually decrease over his life until it gets to the point that passing out from exertion becomes almost normal. At that point he would become a candidate for a heart and lung transplant, which typically has a 5 year life expectancy after the surgery.
- Michael Kunstman
- Christine Ellis
- Erica Clark
- Jesse Bell
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