Baileigh Boo Pectus Surgery

Hi, as most of you know my name is Amanda, I'm Baileigh "Boo" mom. The HERO behind this fundraiser (that I wish we didn't need). Baileigh was born with a rare hereditary disease called marfans Syndrome. It affects her heart ❤️, vision, weaker bones, and pectus. Sadly we've seen it affect all these things in Boos 13 years. The Nuss is a titanium rode that will be placed under her ribs/sternum, then turned out pushing it off of her heart and other organs. It will stay for 2-3 years and then removed. Surgery was scheduled earlier as we had met her deductible for the year, because she had lost so much weight due to all the pain medications she is on they wanted her to wait till January to put weight back on. OF COURSE (stupid insurance) now that her surgery will be in January her deductible is no longer met. she will also need special items after surgery like a reclining chair she can get in and out of that insurance does not cover. Boos recovery will be pretty painful and lengthy so We can use all the positive vibes, prayers, donations you can offer. We will keep updating as her story progresses.

Baileigh has met another female close in age that has had the same procedure in another country, which has been great bc we've been told this a predominantly male disease. She's been able to ask her all the questions.