Baby Kayden’s Fight Against CDH
Donation protected
Diana and Kennon are expecting their second little boy in September. During their routine ultrasound they received some very unexpected and difficult news. Kayden was diagnosed with CDH. Congenital diaphragmatic hernia occurs when the diaphragm muscle — the muscle that separates the chest from the abdomen — fails to close during prenatal development, and the contents from the abdomen (stomach, intestines and/or liver) migrate into the chest through this hole.
After meeting with specialist this week in STL Diana and Kennon learned that babies with CDH have a 50/50 survival rate. After two days of meeting with a variety of specialist and undergoing several tests they were told Kayden has a much rarer form of the disease. Kayden was diagnosed with right congenital diaphragmatic hernia in which his liver, intestines and stomach are all in his chest pushing on his heart and preventing his lungs from developing.
Due to the complexity of Kayden’s diagnoses Diana and Kennon are having their case transferred to Johns Hopkins in St Petersburg, FL where Dr. Kays has specialized in CDH cases and has seen a significantly better survival rate than anywhere else. Johns Hopkins is out of network for the family but Dr. Kays and his team will provide Kayden with the best possible chance to beat this diagnosis.
Kennon, Diana, and Kyler have a long road ahead of them. This strong, loving and resilient family will fight in every way imaginable for their son and little brother. This go fund me page has been set up to assist them with the out of network medical expenses, housing, travel and loss of income they may experience during the pregnancy and birth of Kayden.
Your support will help the family give Kayden the best medical care possible to beat CDH.
After meeting with specialist this week in STL Diana and Kennon learned that babies with CDH have a 50/50 survival rate. After two days of meeting with a variety of specialist and undergoing several tests they were told Kayden has a much rarer form of the disease. Kayden was diagnosed with right congenital diaphragmatic hernia in which his liver, intestines and stomach are all in his chest pushing on his heart and preventing his lungs from developing.
Due to the complexity of Kayden’s diagnoses Diana and Kennon are having their case transferred to Johns Hopkins in St Petersburg, FL where Dr. Kays has specialized in CDH cases and has seen a significantly better survival rate than anywhere else. Johns Hopkins is out of network for the family but Dr. Kays and his team will provide Kayden with the best possible chance to beat this diagnosis.
Kennon, Diana, and Kyler have a long road ahead of them. This strong, loving and resilient family will fight in every way imaginable for their son and little brother. This go fund me page has been set up to assist them with the out of network medical expenses, housing, travel and loss of income they may experience during the pregnancy and birth of Kayden.
Your support will help the family give Kayden the best medical care possible to beat CDH.
Organizer and beneficiary
Amanda Becker Nguyen
Organizer
Nixa, MO
Kennon Ellison
Beneficiary