Kason was born on October 16, 2013 and began having seizures at birth.  After three days in the NICU at Cobb Wellstar, Kason was transported via a Pediatric Critical Care Team to Children’s Healthcare of Atlanta – Scottish Rite where he would spend nearly a month in the NICU.  During this time Kason would be diagnosed with Ohtahara Syndrome.

 Over the next year, Kason would spend on average two weeks out of every month in Children’s Healthcare of Atlanta. 

 After numerous changes in medication and therapies as well as surgery, Kason’s seizures have been brought under control.  However, due to both the nature of his diagnosis as well as the crippling effect seizures have on the brain, Kason cannot sit up, hold his head up or eat by mouth outside of therapy.  He attends therapy three days a week for vision, occupational, feeding and physical therapies in an attempt to improve his quality of life. 

 Kason presently uses feeding pumps and a gastro tube for feeding and a specially designed wheelchair for mobility.  Both Kason’s neurologist and his pediatrician have recommended Kason have a Stander for therapeutic use.  This will not be covered by insurance.  While a stander is not necessary for life, without it the probability that Kason will require surgery on either his knees, hips or ankles at some point in the coming years as he becomes mobile increases greatly. 

 You can follow along with Kason’s journey at www.facebook.com/KasonJilesUpdates