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In a nutshell...
Baby Gannon has seizures, respiratory problems, swallowing proplems, and brachycephaly. The majority of his medical problems were discovered when he was only five weeks old, but the continued medical difficulties he has are causing a financial burden. Any help would be appreciated. If you would like the whole story continue reading below. :D
The whole story.....
Baby Gannon was only five weeks old when we discovered he had several different medical conditions. He threw up and aspirated, at the time we were unaware of what was happening to him. The ambulance came and he was rushed to the ER, his doctors decided he needed to be monitered for 24 hours, during this time he became apnic (stopped breathing). It was then decided the best place for him was Primary Childrens where he would get more specialized care. He was taken by ambulance and with in minutes of arriving he was addmitted to the ICU due to his continued apnic state. A code blue was called which is what happens when the heart stops.
The next four days were spent in the ICU while trying to figure out what exactly was going on. Baby Gannon was on a ventilator because he was unable to breathe on his own. He underwent every test imaginable. The EEG finally gave some answers but not all of them, it showed seizure activity in the occipital area of his brain. But that was only the start of his conditions. The EEG offered an explanation as to why he was apnic, but nothing on his original condition of respitory problems. A scope was preformed showing that he had a laryngeal cleft, something that needed to be repaired as soon as possible. The cleft basically stopped him from closing his airway when he swallowed, which allowed liquid to trickle into his lungs.
On September 8, when he was only six weeks old he had surgery to attempt to repair the cleft. As of yet it was unsuccessful. He has been fed by tube ever since due to the surgery not working.
Baby Gannon was released from Primary Childrens on September 11, but that wasnt the end. He was prescribed a medication for the seizures, but come December it started to wear off, causing him to have apnic events. For the month of December he was in and out of the hospital, while the doctors tried to get his medication regulated.
On January 1, he was also diagnosed with brachycephaly with is a flatness and widness of the head. They were referred to a neurosurgeon who prescribed helmet therapy to help reshape his head. It is unclear if the brachycephaly is related to the seizures or anything that has gone on.
The plan is to help this cute little family with the financial burden of all of these medical bills, so they can focus on taking care of their beautiful baby boys.
The everyday care of Baby Gannon is very demanding. The stress of caring for not only a very active 3 year old and baby with special needs such as Gannons is enourmous. Not only does his mom Ary, do daily therapy but he is seen by an early intervention program(Primetime for Kids) weekly, to help with his respiratory and feeding problems. This little family has been through so much, and they never complain. So lets help them with whatever we can!
Baby Gannon has seizures, respiratory problems, swallowing proplems, and brachycephaly. The majority of his medical problems were discovered when he was only five weeks old, but the continued medical difficulties he has are causing a financial burden. Any help would be appreciated. If you would like the whole story continue reading below. :D
The whole story.....
Baby Gannon was only five weeks old when we discovered he had several different medical conditions. He threw up and aspirated, at the time we were unaware of what was happening to him. The ambulance came and he was rushed to the ER, his doctors decided he needed to be monitered for 24 hours, during this time he became apnic (stopped breathing). It was then decided the best place for him was Primary Childrens where he would get more specialized care. He was taken by ambulance and with in minutes of arriving he was addmitted to the ICU due to his continued apnic state. A code blue was called which is what happens when the heart stops.
The next four days were spent in the ICU while trying to figure out what exactly was going on. Baby Gannon was on a ventilator because he was unable to breathe on his own. He underwent every test imaginable. The EEG finally gave some answers but not all of them, it showed seizure activity in the occipital area of his brain. But that was only the start of his conditions. The EEG offered an explanation as to why he was apnic, but nothing on his original condition of respitory problems. A scope was preformed showing that he had a laryngeal cleft, something that needed to be repaired as soon as possible. The cleft basically stopped him from closing his airway when he swallowed, which allowed liquid to trickle into his lungs.
On September 8, when he was only six weeks old he had surgery to attempt to repair the cleft. As of yet it was unsuccessful. He has been fed by tube ever since due to the surgery not working.
Baby Gannon was released from Primary Childrens on September 11, but that wasnt the end. He was prescribed a medication for the seizures, but come December it started to wear off, causing him to have apnic events. For the month of December he was in and out of the hospital, while the doctors tried to get his medication regulated.
On January 1, he was also diagnosed with brachycephaly with is a flatness and widness of the head. They were referred to a neurosurgeon who prescribed helmet therapy to help reshape his head. It is unclear if the brachycephaly is related to the seizures or anything that has gone on.
The plan is to help this cute little family with the financial burden of all of these medical bills, so they can focus on taking care of their beautiful baby boys.
The everyday care of Baby Gannon is very demanding. The stress of caring for not only a very active 3 year old and baby with special needs such as Gannons is enourmous. Not only does his mom Ary, do daily therapy but he is seen by an early intervention program(Primetime for Kids) weekly, to help with his respiratory and feeding problems. This little family has been through so much, and they never complain. So lets help them with whatever we can!