Baby Paul’s Tumor

Hello Friends and Family,

This note is being currently penned while in Seattle Children’s Hospital with our 13 month-old nephew, Paul and our sister Elizabeth Jane (those of you from our hometown may know her as Beth and within her candle-making family, as Jane). We dropped everything and flew here on a red-eye flight last Wednesday after finding out on Tuesday that Paul was being hospitalized with a brain tumor.

A tumor the size of a softball.

It was the last acute care visit Jane had with him on Tuesday with some insightful physicians who listened to our sister and her worry that his fontanel (soft spot) was a bit raised that they sent Paul immediately in for an MRI at Seattle Children’s.

Pathology will be back today (June 15th) and we are hoping to know by tomorrow his type of tumor, whether malignant or benign, and the full details of what his specialized aftercare will entail. All that aside, we are going to keep celebrating that in his SINGLE brain surgery, they were able to remove the ENTIRETY of a tumor that took up half of the right hemisphere of his brain. So far he has zero deficits and is healing incredibly well.

We are counting our moments in miracles over here.

We know life for our sister's family of four will look entirely different in the immediate future and in the months that stretch ahead. While they are blessed with the privilege of medical insurance; bills for specialized care, special diets, OT, PT, and loss of income are going to be devastating.

If your heart is so moved to donate to this precious little family and the strongest baby boy we have ever known, we would be endlessly grateful.

Prayers and well-wishes are coveted even if the means to financially assist are not present.

This is where we learn what it means to rest in community.

Thank you so much for walking this hard path alongside us.

-- Jane's Sisters