Our family was not prepared and have been devastated by the unfortunate health findings and likely outcome of our baby Noa Kai. Tommy and I have tried to find other ways (clinical trials) and all we can to fight for our precious unborn baby’s life without any success. After many Specialist visits, Doctor visits and testings, Baby Noa Kai is still not expected to live right after birth. This is due to Fetal Bilateral MultiCystic Dysplastic Kidneys with Anhydramnios which will result in Pulmonary Hypoplasia and respiratory death at birth. Both of baby’s kidneys are not functioning and due to his non functioning kidneys, he does not have any amniotic fluid to help develop his lungs. With these health complications, other health issues started to arise and those are health issue that are fatal for the baby. Terminating the pregnancy was mentioned as an option but we could not find it in our hearts to allow that to happen so we chose to continue on with the pregnancy no matter how much of a risk it would have on me. I will carry him for as long as I could just so I can make sure he’s alive and thriving in my womb and we are giving him all the love and care he deserves.

This week will be our last travel to Duke for medical testings and will start preparing for our operation. On Sept 14 at 36 weeks, I will have a cesarean section (my 3rd). We are extremely excited to finally meet our baby Noa Kai, hold him, kiss him and give him all the love we can give him for whatever time he could give us….minutes, hours or few days. I am excited yet scared and heartbroken because I know we won’t be able to take him home with us, alive.

Family and friends, we didn’t want to ask of you for anything else other than prayers but at this point any help would certainly remove any financial burden as we navigate this impossible time. In lieu of flowers or gifts, if you would like to give and help us, I’ve created this GoFundMe account or feel free to contact me directly for our home address. Instead of diapers, car seat, stroller, baby clothes, cute baby things, etc…your help will go towards memorial, funeral/burial costs, some medical bills, fast food for our ever so hungry two boys while I recover and Tommy takes care of all of us, and whatever other expenses that I’m missing that may come up. Your help would alleviate further financial worries and put our focus on our family as we grieve and heal from this pain and nightmare.

We appreciate all of you so very much!! Please continue to keep our family in your prayers. Thank you!

Kindly,

Kristine and Tommy

Aiden and Liam