- This is my only official fundraising page for Macey-Mai -

Hello, My name is Katelyn Im 24 years old and im a mum to three beautiful children. My youngest child Macey-Mai was born with a rare skin condition called Giant Congenital Melanocytic Nevus with her largest Nevus covering her entire back and sides with another large sized Nevus on her head and also over 100 satellite nevi all over her entire body of all different sizes, this skin condition only affects 1 in every 20,000 babies worldwide with a CMN of hers size which is predicted to reach >60cm at adulthood only being seen in 1 in every 500,000 births worldwide, Congenital Melanocytic Nevi (CMN) are caused by a spontaneous genetic mutation that happens by chance while a baby is developing in the womb. It is not passed down from parents and cannot be prevented. CMN results from an abnormal overgrowth of melanocytes (the cells responsible for skin pigment) these genetic change usually happen between the 5th and 24th weeks of pregnancy. 

With also a diagnosis of an extremely rare type of cancer (NRAS melanoma). This rare type of melanoma is associated with the same gene responsible for Macey-Mai’s CMN skin condition the (NRAS gene). 

When Macey-Mai was born on May 7th 2025 I created this GoFundMe a few weeks later to help cover the cost of travel expenses to medical appointments 240 miles from our home, accommodation expenses and also anything needed for Macey-Mai’s care at home and while away at hospital appointments. When Macey-Mai was born she had seven painful bleeding lesions on her giant CMN on her back which all grew very rapidly causing her a lot of extreme pain daily during this time Macey-Mai experience multiple infections within these areas meaning she needed to be on regular antibiotics for the first four months of her life. Macey-Mai underwent surgery to have all seven lesions removed and each lesion was sent for a biopsy to check to see if a rare form of melanoma associated with her skin condition was present within any of them. Unfortunately after a long few months waiting for all the results we heartbreakingly received the terrifying news that one of these lesions did in fact contain this aggressive and deadly form of melanoma within it (not the type we hear of older people getting from the sun UV) this type of melanoma is linked to the same gene thats responsible for Macey-mai being born with CMN and is much more aggressive then your standard BRAF melanoma associated with the suns UV. This type of melanoma is rare and also highly aggressive and spreads fast to nearby lymph nodes and organs. Medical appointment have become a lot more regular then they already were before and the financial strain is becoming a lot harder for our family, we desperately need your help to reach our goal in donations so that we haven’t got to worry about the financial pressure of medical appointments hundreds of miles from our home and anything Macey-Mai needs for her care on top of everything else we have going on with our precious little girls health. 

 All donations will be used to help with 

 ~ All travel expenses for medical appointments in London  

~ Accommodation for medical appointments in London 

 ~ Anything needed for Macey-Mai’s needs/care 

~ Be able to make amazing memories together as a family (fun days together as a family making the most precious memories in between health care appointments). 

Over the last year We’ve managed to raise over £30,000 which has helped massively to ensure we could get to continuous health care appointments in London for surgeries, scans, tests and so much much more donations have also helped with the cost of trains/buses/taxis/tubes and hotel stays all while in London for hospital appointments as well as absolutely anything needed for Macey-Mai’s care. Since Macey-Mai’s cancer diagnosis we have decided to try our absolute hardest to try and also fundraise for Macey-Mai to be able to enjoy amazing experiences she truly deserves most. We would love more then ever to be able to make precious memories giving our little girl all the happiness she deserves with fun family days out making memories together as a family in between hospital appointments. Macey-Mai has been through so much already in just 12 short months she truly deserves all the happiness in the world. shes seen more drs and hospitals then she has regular people at this point , we truly just desperately want our little girl to be able to have all the happiness she truly deserves mostly. But we can’t do this without your support with donations Please please help us to continue on this fight by donating so we can continue to afford all upcoming medical appointments expenses as well as hopefully being able to give Macey-Mai the most beautiful and happiest life by being able to provide her with all the fun experiences and happiness she truly deserves most. Thank you all for your support Katelyn, Macey-Mai’s Mummy✨✨