As some of you may already know I gave birth to the most beautiful little girl on the 07.05.2025. Macey-Mai was born with a rare disease called Congenital Melanocytic Neavus syndrome. Macey-Mai’s largest neavus covering her entire back and sides is called a Giant congenital Melanocytic neavus because of its size, a Neavus of this size is extremely rare in itself but being born with CMN only occurs is 1 in every 20,000 births therefore this condition is extremely rare itself. Macey-Mai also has over 100 satellite CMNs all over her entire body. Unfortunately when I gave birth to Macey-Mai she had seven painful bleeding lesions growing on her largest CMN, at just three months old Macey underwent surgery to have all seven lesions removed by specialist surgeons at Great Ormond Street Hospital after having all seven lesions removed each one was sent for a genetic test to see which gene mutation caused Macey to be born with CMN and a biopsy was also done on each one to check for Malignant melanoma, unfortunately the genetic test shown two gene mutations within Macey’s Neavus instead of the usual one found in 95% of CMN cases meaning Macey-Mai’s is unfortunately within that 5% born with a cancerous CMN. Macey-Mai’s CMN is much more harmful to her then we first thought due to the two gene mutations within her neavus changing her neavus from a begin CMN to a high risk malignant CMN which at any point could become seriously aggressive melanoma and potentially life threatening to Macey-Mai. The biopsy taken on the lesions shown the worst… malignancy was found within them. We are currently waiting for a PET CT scan to see if the malignancy has spread and is deep within other Parts of Macey-Mai’s body. I have made this GoFundMe to be able to afford to give Macey-mai the best possible life, we truly have no time frame on when things could take a turn for the worst and I want nothing more then to be able to make lasting memories with my beautiful little girl in between navigating our way through this extremely tough time, Macey-Mai is under great Ormond street which is almost 250 miles away from our home, each appointment cost a lot in travel, accommodation and also anything needed while we’re there the financial pressures are extremely difficult at the moment and I really want nothing but the best for my little girl, any donations go such a long way in helping Macey-mai and our family, we truly are forever grateful for any shown support thats going to make our little girls life the happiest it can possibly be for her. Thank you all Katelyn Macey-Mai’s Mummy x