Baby Kennedy with 22Q11, Pierre Robin Sequence & Cleft

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$14,575 raised of 

Baby Kennedy with 22Q11, Pierre Robin Sequence & Cleft

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On the 13th of February Kayla and Rick welcomed their beautiful baby girl Kennedy. After only being home for 6 days Kennedy ended up in hospital after multiple respiratory, feeding and sleep issues with a misdiagnosed cleft palate. From there more problems arose for little Kennedy and she landed herself in Rockhampton ICU after they almost lost her, she was then transferred to the Brisbane Children’s Hospital via the royal flying doctor’s service due to the severity of her symptoms.

After a month in Brisbane hospital Kennedy was diagnosed (along with a soft cleft palate) with Pierre Robin Sequence (PRS). In her short life she has had multiple procedure’s and battled so much and now requires full time oxygen and a feeding tube.

Kennedy was only home from Brisbane for 10 days when her genetic blood work came back, at which point she received her 3rd diagnosis of 22Q11, also known as DiGeorge syndrome. This syndrome has over 180 symptoms and requires lifelong care, medical intervention, support and surgeries. Kennedy had complications with her breathing over the weekend and has today been transferred back down to the Royal Children’s Hospital. With multiple appointments and surgery required down in Brisbane this year alone this family have a long road ahead juggling Kennedys complex care needs along with the family’s day to day lives.

To relieve some of the financial burden and give Kennedy the best opportunity to thrive we are raising funds to help cover medical treatments, travel, time off work (with Kayla most likely to not be able to return to work) therapies & recommended surgeries, along with trying to keep their family together whilst they have these lengthy admissions in Brisbane.

Every donation, no matter the size, brings us one step closer to giving Kennedy the best possible future. If you can’t donate, sharing this campaign with others can make a world of difference.

Co-organizers2

Sophie Fulton
Organizer
Ironpot, QLD
Fi McBryde
Co-organizer
Sharyn Clarke
Co-organizer
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